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Patients Ulcerative colitis
What is your UC story? Let's share!
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GillianSTR
GillianSTR
Joined in 2017
@Courtney_J I was diagnosed about 15 years ago. I was having frequent diarrhoea, blood in my stool, pain in my lower stomach and unexplained weight loss. I kept putting off going to the doctor because I've always disliked the doctors since I was a girl. When I finally did go, my GP just told me that I was just overworked and needed to eat more fibre and sleep more. A week or so later I started feeling feverish and ended up going to A&E where they did a scan and the doctor told me it was UC and it was very advanced. By that point I'd been running to the toilet at least 30 times a day. They put me on a biologic and it has helped tremendously. Lately, though I've been struggling with fatigue, if anyone has any advice I'm very interested!
TiffyT
Good advisor
TiffyT
Joined in 2020
I've had UC since I was born, or at least since I can remember. Even when I was very very small I remember having "toilet issues". I was bullied a bit at school for it, people laugh and say I wore nappies (they weren't far off I guess haha) and it was really hard for me for a good while. Fortunately I've come through all that and I think I'm stronger for it today. 💪
KathJulia
KathJulia
Joined in 2020
I had a dreadful accident with Salofalk Enema (Mesalazine) on my bedroom cream carpet and was ready to contact the carpet company to replace the whole carpet in my bedroom (which was the same carpet down the stairs and two other bedrooms). I made it ten times worst by trying to remove it by hand with soap and water and letting it dry. Before I threw the carpet out I thought I would try Lidl's concentrated washing liquid as the last result as it removes all the stains out of my underclothes with no trace left. What had I to lose!. The stain was a large deep purple one and looked awful. I put the Lidl's concentrated washing liquid in my carpet vax machine. WELL MARVELLOUS - the stain came out and you would not have known that it had been there. Hope this helps someone else who has this problem.
keithjohn
keithjohn
Joined in 2020
hi,i was diagnosed with uc after suffering in silence for a long time,had magic eye 29th may,put on asacol mr 800 2 tablets three times a day,about the 14th july i become seriously unwell but wouldnt let anybody ask for help for me,on 18th july my daughter phoned for a ambulance they were here in minutes and was rushed to hospital where i spent the rest of july and august suffering from sepsis and liver abceses,i come home the end of august after going into septic shock three times while in hospital,i only had hours left at the time my daughter phoned the ambulance so i owe her my life and all the medical staff and the acute care team that looked after me for a month after being discharged,on the 23d of october i had a phone call from the hospital which ive been having tests for a long time and now diagnosed with dermatomyositis for which im having tests before starting treatment,so not been a good year,please i ask anyone reading this is that if you feel unwell please seek help as soon as possible they are there to help and dont delay as if it wasnt for my daughter i would not be here now x
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Joined in 2020
Hello everyone,
How are you today?
I thought I would open this discussion so that we can get to know one another better!
So, what is your ulcerative colitis story? When and how were you diagnosed? Did you receive your diagnosis relatively quickly, or did you have to see multiple doctors? What treatments have you tried for it? How are you doing today?
@KJLees @insaino86 @vikkiwhit @Portiscliff @Mumblesbrett @amaarahmaster @bromley9 @LILYGIBSON @Saram8 @Bekii92 @Trixi7 @hopekenna @lucyupchurchhotmail.co.uk @klon1710 @Delpow @Tara10 @Tashpatz @Stephanie123 @kathdurbin
Feel free to share here and help our community grow!
Take care,
Courtney