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Current topics:

• - Living with one eye
  Hello I've never posted before, but was wondering how many others have had an eye removed. I was only 10 weeks old and was then the youngest patient to have the operation i had, my mum noticed I would
• - Any advice for dilating eye drops (mydriatics)?
  I am scared, have to see a eye consultant next week, who will be giving me eyedrops to enlarge my pupils....i am so scard it lasts for six hours .......cannot see much after the drops.................
• - Newly diagnosed with Wet Macular Degeneration - Advice?
  How serious is this

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak

Current topics:

• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay positi
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today?  The pharmaceutical groups Pfizer (USA) and BioNTech (Germany) announced on Monday 9 November that their vaccine candidate is 90% "effective" in preventing Covid-
• - COVID-19: How do you feel about the current guidelines in place?
  I am beyond words when you watch the news and see the amount of people not following guidelines and are not taking this seriously how do others feel? ☹️