Dystonia Forum
Our forum dedicated to dystonia brings together patients and relatives of patients. Let's discuss this disease of the nervous system together : symptoms, daily life, treatments... Let's exchange tips!
Ongoing discussions - Dystonia
Current topics:
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- I have cervical dystonia and suffer from the stare of others
Hello, I'm the first to talk, I hope I'm in the right place... I have cervical dystonia and the longer it goes on, the more it impacts my daily life. I feel like people are staring at me, that the gir
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- Pain
I have recently been diagnosed with cervical dystonia. I am due to have Botox injections next week and am really hoping this eases my symptoms. I also have on and off pain all over my body from feet t
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- Focal Dystonia: waiting for another brain scan
I had this in my right hand first of all 9 years ago and have managed quite well.This was due to stress or not being able to write properly.No-one seems to know what occurred 1st.A brain scan showed s
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Current topics:
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- Botox treatments for dystonia - experiences, opinions, advice?
Hı I have been suffering from cervical dystonia for a year. My head rotates to right side. . I have had two botox treatments so far but İ still cant turn back to normal position. How many more sessi
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- Investigating cervical dystonia: your experience between two injections of botulinum toxin type A
Hello :) We are launching a new international study to better understand patients with cervical dystonia treated with botulinum toxin type A injections. How long do the injections last? What symptoms
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- Dystonia treatment
Hi, does anyone know someone who has dystonia that had treatment?
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Current topics:
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- Spasms in back
Hello. Has anyone heard of involuntary spasms of lower back making it difficult to walk.I have no pain just forced into an unnatural position.Saw Neurologist this morning and have been referred for a
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- Involuntary muscle movements
Hello, One of the main symptoms of focal dystonia is the appearance of involuntary abnormal movements, related to the uncontrolled contraction of muscles. Do you or your loved one suffer from it? Ask
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