Do you feel like fibromyalgia has changed who you are?

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Somya.P

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30/10/2025 at 15:00

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Somya.P

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Last activity on 10/05/2026 at 20:39

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1,046 comments posted | 27 in the Living with fibromyalgia group

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Hi everyone 💙

How are you doing today, truly?

Living with fibromyalgia is more than just managing pain or fatigue. It can quietly reshape how you move through the world. Some members feel like they’ve lost parts of themselves that they once knew well, like their energy, independence, or spontaneity. Others discover strengths they didn’t know they had: resilience, empathy, or a new way of listening to their bodies.

Do you ever feel like fibro has changed you, not just physically, but emotionally or mentally?
Has it shifted your identity, your relationships, your sense of purpose… or how you show up in the world?
What has surprised you most about the person you’re becoming through this journey?

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There’s no right or wrong way to feel. Your story, just as it is, might help someone else feel a little less alone today.

Take gentle care,
Somya from the Carenity team 🌼

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tinkerjack1912

30/10/2025 at 20:05

tinkerjack1912

Last activity on 06/05/2026 at 10:32

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8 comments posted | 4 in the Living with fibromyalgia group

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Yes 100%. I can not do half of what I used to do and need support just to get about now where before I was so active. This condition has effected me both physically and mentally

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Tinkerjack

Do you feel like fibromyalgia has changed who you are? https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/do-you-feel-like-fibromyalgia-has-changed-who-you-are-5862 2025-10-30 20:05:52

robjmckinney

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30/10/2025 at 20:57

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robjmckinney

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Last activity on 10/05/2026 at 01:31

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My wife says no, heart failure, Lupus, COPD and a dozen other diseases were more life changing!

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robjmckinney

gerriwolf

Edited on 27/03/2026 at 15:57

gerriwolf

Last activity on 27/03/2026 at 16:06

Joined in 2026

Patient, Lupus since 2026
Other conditions: Chronic pain, Depression + 2 other conditions

4 comments posted | 4 in the Living with fibromyalgia group

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It was overwhelming how my abilities can change so drastically… sometimes not just day to day but every hour. When the pain and fatigue hit, they hit hard and I can feel myself getting irritated or drained so quickly. I have to watch my limits when I'm out and about.
But as hard as it’s been, it’s also made me so much more compassionate. I see other people’s struggles and empathise so much more. Everyone has their own boundaries, struggles, exhaustion. It's also really forced me to look at how much my mental state affects my body. I actually pay attention to every part of my health now. I’ve learned to protect my emotional energy very fiercely. Stress can send me into a flare so fast, so I choose my reactions carefully. Not everything deserves a piece of me.

Somya.P

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05/05/2026 at 14:51

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Somya.P

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Last activity on 10/05/2026 at 20:39

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1,046 comments posted | 27 in the Living with fibromyalgia group

104 of their responses were helpful to members

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Hello everyone,

living with fibromyalgia can affect much more than physical symptoms. For some people, it can also change how they see themselves, their daily life, and their relationships.

Do you feel like fibromyalgia has changed who you are?
In what ways has it affected your identity, your outlook, or the way you live?

Please feel free to share your experience with the other members. 💛

Take care,

Somya from the Carenity team 🌼

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Somya from the Carenity team 🌼

Do you feel like fibromyalgia has changed who you are?

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