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Patients Fibromyalgia

Fibro medication

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10 comments

lady going gaga

10/01/2017 at 16:06

Hi just wondering if anybody has tried any new Medication for pain and fatigue I'm currently on lyrica and venlafexine which I don't think work open to all suggestions

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Margarita_k

Community manager

11/01/2017 at 15:14

@ lady going gaga

Hi and welcome to Carenity!

Take a look at this discussion: https://member.carenity.co.ukhttps://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/pain-medication-1050. I think you will get more feedback if you post your question there, and tag members that have commented to ask them for advice.

If you need help using Carenity please feel free to contact me.

Kind regards,

Margarita

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Community Manager

Fibro medication https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/fibro-1527 2017-01-11 15:14:36

lady going gaga

11/01/2017 at 19:06

Thank you I had already seen these discussions I am.looking for alternatives as any pain meds I've tried stop working very quick

Thanks for getting back to me

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Veronica ❤

Fibro medication https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/fibro-1527 2017-01-11 19:06:30

Myfibro

16/01/2017 at 18:23

I've had fibro ten years now..since last year have been having hyperbaric oxygen chamber therapy with amazing results.. Barely use painkillers anymore and much more able to participate in life again.. Please if you can try this it works... It sends 100% oxygen to every cell in your body and after ten sessions I could sleep as well as pain decreasingly all the time. Energy is back in my life!

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Dawny

Fibro medication https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/fibro-1527 2017-01-16 18:23:33

Woodland

16/01/2017 at 18:59

Hi I've heard this from a lot of people they say it's helped . Also some people have it for other things of illness . It depends where you live , your postcode and if you get the funding these days . It's so wrong The NHS are wanting to help but their hands are tied if they can't get the money ?

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Elliott

Fibro medication https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/fibro-1527 2017-01-16 18:59:38

lady going gaga

17/01/2017 at 12:17

Thank you I will have to look into it is live in Ireland not sure what's on offer here or of prices

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Veronica ❤

Fibro medication https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/fibro-1527 2017-01-17 12:17:00

Myfibro

17/01/2017 at 20:26

I live in Ireland too.. I had to borrow the money but its mostly funded by charity and people with illnesses contribute just 20 euro per session. but look this up BHOC.IE.. Bandon hyperbaric oxygen chamber. .. Its suggested twenty sessions as quick as possible ( I found benefit after 6 sessions and by tenth session I was hardly on painkillers) I still have top up sessions when needed but the change in all of me is amazing! Please look them up.

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Dawny

Fibro medication https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/fibro-1527 2017-01-17 20:26:45

Cancun123

17/01/2017 at 23:23

Is this treatment available on the NHS in the UK? Does any one know?

Thanks

Fibro medication https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/fibro-1527 2017-01-17 23:23:56

Myfibro

18/01/2017 at 12:44

No it is not funded anytime.. Hence I made the decision to borrow the money and am still paying it off now..but it was worth that decision many times over.

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Dawny

Fibro medication https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/fibro-1527 2017-01-18 12:44:16

Margarita_k

Community manager

13/04/2018 at 13:33

This discussion can be of use to many members! Don't hesitate to share your opinion about your medication and your overall care.

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Community Manager

Fibro medication https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/fibro-1527 2018-04-13 13:33:48

Armenianchick

27/04/2018 at 20:34

I have mostly stayed away from painkillers as I realised (and the head of my Pain Team confirmed) there is no real painkiller that helps fibro pain. The only treatment I have found that helps with the pain is acupuncture. I am lucky enough to have a community acupuncture clinic in the village I live in where you pay on a sliding scale according to what you can afford. Recently they have had NHS funding to treat patients for free course to help with pain. Not sure what the criteria is but might be worth investigating if you are ok with needles and have a community clinic in your area.