Topic of the discussion
Posted on 02/09/2015 00:50
Hi I'm Amber and I guess I've just come here in the hope of having people to talk to about Fibro and the effect it has on our loved ones. I know I have the support of the people around me but I also feel very alone at times and often don't talk about how I may be feeling because I already feel awful for not taking part as much as I used to be able to and I don't want to burden them with having to hear how I'm feeling all the time aswell.
Beginning of the discussion - 02/09/2015Fibro chat https://www.carenity.co.uk/forum/fibromyalgia/living-with-fibromyalgia/fibro-chat-484
Posted on 02/09/2015 02:04
I'm Aph. I came to really talk to people about what this is going to mean for me. The more tests the doctors do to rule out other conditions, the more certain they become I have Fibro. I am not sure what is worse really the days where im in lots of pain or the frustration at not being able to do the basic things around the house. I like to try stay positive though, more for the people around me. I am not ready to be someone's burden either. x
Posted on 19/02/2016 00:14
it took a long time to get doctors even to listen to me and the one symptom I have complained about over the years is chronic tiredness and doing stuff to get through the day is a nightmare I find winter such a struggle and changes very quickly the stiffness and pain is unbelievable.people think I am slow or to lazy I am like you suffer like I do then tell me the same thing.i try to be positive but sometimes I just want to scream and shout and tell people to do one.
Posted on 19/02/2016 14:28
Hi, it took 18months to get diagnosed, I too saw every specialist and every consultant possible. They finally diagnosed just over 12 months ago. My GP said ah well we can't do anything about that. I fought back and say oh yes I will and I want help. I'd heard about pain management programmes and asked to be referred. It 's the best thing I every did. You need to want to work with it though otherwise it won't help. It's hard physically and emotionally but it really helped me not only deal with the pain, the emotions, the depression, the fear but also helped build my muscle strength. I now do tai chi regularly , it hurts but it really helps with my mobility and over time I hope I will get even stronger. It's such a hard illness to deal with and yes I feel like shouting especially when my husband complains about his bad back and I keep my pain to myself as much as possible.
Posted on 20/02/2016 11:03
its like they don't understand it and need training on it.i could understand if it was something rare but its not its actually grown quite a bit its just a lack of understanding don't want to know.x