Living with Fibromyalgia during the Coronavirus Pandemic

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Patients Fibromyalgia

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Posted on

Hello all,

I noticed in my other group that there are a few discussions set up about the coronavirus, so I though maybe we could have one here. 

I think we're all a bit in the same situation right now with the virus. It's not great fun being cooped up in doors, but my husband and I are doing our best to cope. I've been getting into some old unfinished embroidery projects that I had put aside years ago so that's keeping me busy, but it has gotten harder and harder over the years with the pins and needles in my hands. But I muddle through!

I hope you're all doing well and are managing your symptoms and medications! I was due for an appointment with my doctor this month but it's been cancelled as it's "non-essential".  Let's all keep in touch here!

MissFibro xx

Beginning of the discussion - 23/04/2020

Living with Fibromyalgia during the Coronavirus Pandemic


Posted on

@MissFibro Hi, I'm new to this site, but I'll comment anyway! I've been having more sleep problems since the lockdown started, and I'm guessing because I'm not getting out and about as I used to and I think it's playing games with my circadian rhythm. I'm comforted by the fact that primary fibro like I have doesn't affect our immune system so we're not particularly at a higher risk of complications than others, but staying at home is still hard on me mentally. I try to get out once a day for a walk and a brief stretch, but it's not enough so I've been feeling more achey and tired.

Has anyone had symptoms or know anyone who has gotten it? 

Stay safe!

Living with Fibromyalgia during the Coronavirus Pandemic


Posted on

I really hoped that with being confined to home and walks in the local area, I would start to feel my pain lessening. Instead it has got worse and it's harder to fight off the depression. I think when I'm busy the adrenaline flows and carries me through.

I feel guilty about moaning though whilst so many people are going through hell with the corona virus.

Living with Fibromyalgia during the Coronavirus Pandemic

• Community manager
Posted on

@MissFibro @pinsnneedles @Lizzie Hello MissFibro, pinsnneedles and Lizzie, thank you for starting and participating in this discussion! It's so important that we stay connected as a community during these difficult times! I'm glad to hear that you all are doing well despite these stressful circumstances. Let me tag some members who may not have seen the discussion!

Hello members, I hope you don't mind that I've tagged you! How are you doing during the lockdown? Have you been taking any special precautions? What are you doing to take care of your symptoms or your mental health during this time?

@ZoanneSmith@Bebbabe53@mazp43@NickyS@sunny86@Moodykitten@ellie763‍ @tracy0911@Misspiggy‍ 

Take care,

Courtney

Living with Fibromyalgia during the Coronavirus Pandemic


Posted on

I am struggling with my mental health right now,I also have personality disorders and autism,

I talk to friends on the phone,social media,I play games on my phone ,have a word search app, do chores when I can,I have been sorting my clothes that don't fit anymore for the charity shop.

mazp43.

Living with Fibromyalgia during the Coronavirus Pandemic


Posted on

Hi I'm a newbie here I have COPD pulmonary fibrosis fibromyalgia and arthritis I also have mental health problems borderline personality disorder and schizoaffective disorder. I'm in pain most of the time. Just needed to vent I'm feeling fed up

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