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Feeling more or less weak throughout the day
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Courtney_J
Community managerGood advisor
Hi @lilyofthevalley ,
welcome to Carenity!
I'll tag some of the members here, so that they could share their experience with you, and answer your questions.
@Medsassi @Mg-mom @kerryab1 @NicoleS @Trishna @AndrewJackson @1234Mysthenia56 @michelle.oliver @MaggieMG @RebeccaCopson @Aurelie @Priscillajess @niamhjudgeoconnell @LiudmilaTerekhova @jonscfc @eirlysjenat @jannig @Sash1980 @Susie38 @Shazz2rs @KatieB @Babyoleg @swright570 @Mariarae
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
Zaphod001
Welcome to MG! This is often a very confusing disease. Symptom variability is a central issue. In general terms we are better in the mornings and worse in the evenings. However if you’ve been very active in the morning it wouldn’t be unusual to feel fatigued in the afternoon. After a little rest (rest is key to managing fatigue) you will feel better hence sometimes you will feel better in the evening. The real key is knowing your limits.
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MaggieMG
@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.
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MaggieMG
@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.
See the best comment
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lilyofthevalley
Hello everyone, I am Lily, diagnosed with myasthenia recently, so new to all of this, and very scared of what awaits me in the future..
I still have lots of questions about this disease, that's why I decided to join a forum. So if someone could answer my questions, I would be very grateful!
I have noticed that I've been having good and bad days, but I guess this is quite normal. What I was wondering about was why it is that I sometimes feel great in the morning, then worse in the afternoon, and then again slightly better in the evening, or sometimes worse than in the afternoon. By better I mean less weak and tired. Has anyone experienced these "fluctuations"? Is it something that is normal for myashtenia?
I will be grateful for any help.
Lily