Ocular coloboma
Forum

Current topics:

• - Any advice for dilating eye drops (mydriatics)?
  I am scared, have to see a eye consultant next week, who will be giving me eyedrops to enlarge my pupils....i am so scard it lasts for six hours .......cannot see much after the drops.................
• - Eye conditions and daily life: questions, experiences, advice
  Hello everyone, I thought I would open this discussion so we can get to know one another better! How does your eye condition affect your daily life? Have you had to change aspects of your life or r
• - Living with one eye
  Hello I've never posted before, but was wondering how many others have had an eye removed. I was only 10 weeks old and was then the youngest patient to have the operation i had, my mum noticed I would

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak

Current topics:

• - Are you going to continue to wear a face mask after you've had both vaccine jabs?
  I've been thinking about this since I had my first jab 3 weeks ago. I see many advantages in continuing to wear a face mask ~LESS pollution, less bugs leading to chest and other infections, lowering
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay positi
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today?  The pharmaceutical groups Pfizer (USA) and BioNTech (Germany) announced on Monday 9 November that their vaccine candidate is 90% "effective" in preventing Covid-