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  • Getting diagnosed with fibromyalgia: Why is it so complicated?
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Living with fibromyalgia

Getting diagnosed with fibromyalgia: Why is it so complicated?

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avatar Somya.P

Somya.P

Community manager
09/10/2024 at 11:00

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avatar Somya.P

Somya.P

Community manager

Last activity on 03/10/2025 at 11:43

Joined in 2023


727 comments posted | 20 in the Living with fibromyalgia group

55 of their responses were helpful to members


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Hello everyone

How are you doing? 😊

Getting a diagnosis for fibromyalgia can be a real challenge for both patients and doctors. This condition is often diagnosed through a process of elimination, after ruling out other illnesses with similar symptoms. 😕

The widespread pain, chronic fatigue, and sleep disturbances can be confusing, causing many patients to go through a long period of uncertainty before finally receiving a clear diagnosis. On top of that, the lack of awareness and training among some healthcare professionals can worsen the situation, delaying appropriate care and support.

How long did it take for you to get a fibromyalgia diagnosis? What difficulties did you face with doctors during this period of uncertainty? What tests or exams did you undergo before fibromyalgia was identified?

@Angiebaby1964 @anacampos @Daisyp @moiramisty @Karenjs @cj1972 @pamelajacks @tracey70 @Angel1949 @ChrisK @carol44 @Scrowther @fibrofogbaby @steft69 @Dottyanne @ cristalwizard @mairead @Minnie @Nysera @lynn38 @Christina1958 @seanshah @Beyondwords_uk @Cmad66 @diane_knox @daisy9 @Luckydip @suze-d @Mulligankaren @jreikimaster @pete55 @westie2803 @mcintam @tracyham @ladyann @Jackiebl @Annikins59 @RS2scooby @Eileenpfw&hotmail; @Catlady @tazzmarc69 @jenniferodwyer @welshAly @crystalpaquette @Whizz.com @trisha1952 @MizzyH @susiep @Markdancer63 @AngelaP63 @PeteLamo @melgirl @Hardpillow @akasha @onlyant @Fifer @carol31 @Splasha @VonnyM @tawidow @Chaos1 @mariam2 @sharden @Cheerygal43 @EstelleM @maxeypoo @thelicencee @Welsh Wales @Bubblefaery @monski @Gunning @Bearess @mandy15 @Karen3 @Enty66 @rachy1 @Dassiansoxx @Caroline5 @purereplica66 @Louise84 @carrmacc @JackiB @jumping @Shaz70 @Charlee73 @Wendinthewillows @Pipizebs @beverley1 @Sarahhm69 @Mumek8 @Sandys @trishHO1958.com @jojohere @Ber361 @Janeva @Kaz1960 @Lexiebelle @clive933 @Jane.m @popsicles 

We’d love to hear your experiences and thoughts on this topic. Sharing your story could help others who are going through similar struggles! 💬🤝

Take care!
Somya from the Carenity Team 🌼

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avatar ladyann

ladyann

13/10/2024 at 14:02

avatar ladyann

ladyann

Last activity on 27/04/2025 at 22:12

Joined in 2015


4 comments posted | 1 in the Living with fibromyalgia group


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I cannot remember how long ago i was told but more than 15yrs. It took months rather than weeks.each visit was repeated.' Walk dont just sit'i am a very aware i must do for myself.as im now in my late 70s,my energy to do is way less.with other conditions.osteoarthritis.severe depression.etc.some i manage,some i need pain relief.im on my own now so my day is what it is.once im up.my gardens have saved me.outside in the daylight.wonderful.pain disappears for a while.it will get worse as i get older i will hopefully manage.

ann harford


Getting diagnosed with fibromyalgia: Why is it so complicated? https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/getting-diagnosed-with-fibromyalgia-why-is-it-so-complicated-5429 2024-10-13 14:02:51

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avatar PeteLamo

PeteLamo

28/10/2024 at 01:10

avatar PeteLamo

PeteLamo

Last activity on 20/12/2024 at 19:22

Joined in 2015


7 comments posted | 3 in the Living with fibromyalgia group


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@ladyann I feel your pain and I was also diagnosed over 15 yrs ago and with spinal problems, osteoarthritis, 2 heart probs and needing knew knees as well as asthma and copd, I also rely on my garden to keep me active but most of all would love to get back walking as I loved walking for miles.

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P.Lamont


Getting diagnosed with fibromyalgia: Why is it so complicated? https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/getting-diagnosed-with-fibromyalgia-why-is-it-so-complicated-5429 2024-10-28 01:10:49

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avatar PeteLamo

PeteLamo

28/10/2024 at 01:26

avatar PeteLamo

PeteLamo

Last activity on 20/12/2024 at 19:22

Joined in 2015


7 comments posted | 3 in the Living with fibromyalgia group


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It was about 22 yrs ago and it was go to see my GP every fortnight for 3 or 4 months keeping a diary to take with me describing my pain rating it 1 to 10, 10 being severe which I was usually between 5 and 10 and from time to time had to stand whilst getting touched on certain parts of the body which most occasions put me through the roof with pain and trust me the GP was barely touching me. My reports were being sent to a specialist and eventually was l had fibromyalgia and was amazed at how many other things going on like IBS ect were all part of the fibro.

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P.Lamont


Getting diagnosed with fibromyalgia: Why is it so complicated? https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/getting-diagnosed-with-fibromyalgia-why-is-it-so-complicated-5429 2024-10-28 01:26:58

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