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Patients Warm autoimmune haemolytic anaemia
WAHA: What do you think about your treatment?
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Jopreston
Jopreston
Last activity on 18/06/2022 at 19:17
Joined in 2022
1 comment posted | 1 in the Warm autoimmune haemolytic anaemia Forum
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I don't take any treatment for warm Agglutinin I also have cold Agglutinin disease for which I take 5 mg of folic acid daily. My haematologist has never discussed warm Agglutinin with me. And I worry that the amount of clothing I have to wear to stop me turning blue or lose feeling in extremities will have an adverse effect on the warm agglutinins?
Chaszzz
Chaszzz
Last activity on 01/11/2022 at 15:46
Joined in 2022
2 comments posted | 1 in the Warm autoimmune haemolytic anaemia Forum
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WendyJune
WendyJune
Last activity on 23/03/2022 at 15:08
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5 comments posted | 5 in the Warm autoimmune haemolytic anaemia Forum
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@Jopreston Oh that's interesting that you have a both a cold and warm blood disorder. I hope you don't suffer too much from either!
I'm currently on a steroid for mine and besides the fact that I've blown up a bit from it, I think it's been helping.
@Chaszzz what about you?
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Hi ,
I'm currently on steroids, folic acid and currently having rituixmab treatment. I was diagnosed 6 months ago been in hospital twice so far with this and in those 6months had 15 weeks on sick from work. The fatigue and breathless is driving me crazy and praying on my mind regarding returning back to work once sick note runs out
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Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 5 in the Warm autoimmune haemolytic anaemia Forum
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Hello everyone,
How are you today?
Let's talk about some of the treatments for warm autoimmune haemolytic anaemia (WAHA)!
Are you taking or receiving any treatments or medications for your WAHA? If so, what kind? What do you think about it? Is it helping?
Let's share together here!
Take care,
Courtney