Back

Adenine phosphoribosyltransferase deficiency Forum

  •  21 members
  •  13 discussions

Medical fact sheet

Adenine phosphoribosyltransferase deficiency

All
Living with a rare disease
Living with diseases of nutrition, metabolism and endocrine glands

Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar Somya.P

Living with a rare disease

How were you diagnosed with a rare disease?

avatar Somya.P

avatar unhappy

Living with diseases of nutrition, metabolism and endocrine glands

Addisons Disease- Primary Adrenal Insufficiency

avatar StephenP198

avatar JosephineO

avatar aglowlady

Living with diseases of nutrition, metabolism and endocrine glands

Severe B12 deficiency and malabsorption

avatar lesmal

avatar lacemaker

avatar Somya.P

Living with diseases of nutrition, metabolism and endocrine glands

How do you take care of your pancreas?

avatar lesmal

Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

Living with diseases of nutrition, metabolism and endocrine glands

Difficult Diagnosis

avatar JMouzac

avatar jieyang-en

avatar Tontnella

Living with diseases of nutrition, metabolism and endocrine glands

Gout - Allopurinol and side effects?

avatar Courtney_J

Living with diseases of nutrition, metabolism and endocrine glands

Alpha-1 Antitrypsin Deficiency - Have you been diagnosed?

avatar Courtney_J

Living with diseases of nutrition, metabolism and endocrine glands

Living with obesity: On a daily basis, what would you like to change?

avatar jessyoucan

avatar ZebLo1

Living with diseases of nutrition, metabolism and endocrine glands

Parathyroidectomy

Living with diseases of nutrition, metabolism and endocrine glands

Hello

avatar Leislei

Give your opinion

Survey

Living with obesity: Do you feel supported in your care and treatment?

Survey

Living with obesity: Do you feel supported in your care and treatment?

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

How were you diagnosed?

Articles to discover...

Those daily energy slumps: What your biological clock is trying to tell you

27/06/2026 | News

Those daily energy slumps: What your biological clock is trying to tell you

The immune system: Your body's first line of defence and the science behind it

20/06/2026 | News

The immune system: Your body's first line of defence and the science behind it

Why spring changes your mood, energy, and body more than you think

23/05/2026 | News

Why spring changes your mood, energy, and body more than you think

Between promise and reality: can omega-7 improve metabolic health?

18/04/2026 | Nutrition

Between promise and reality: can omega-7 improve metabolic health?

Living a healthy life with a chronic illness: is that really possible?

07/04/2026 | News

Living a healthy life with a chronic illness: is that really possible?

Is too much animal protein bad for you?

04/04/2026 | Nutrition

Is too much animal protein bad for you?

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

25/03/2026 | Testimonial

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

When the brain is overloaded: The hidden effects of emotional and cognitive multitasking

21/03/2026 | News

When the brain is overloaded: The hidden effects of emotional and cognitive multitasking