Ongoing discussions - Cold Agglutinin Disease
- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! For some it can be a long, arduous process, and for others it can go quickly
- Living with Usher syndrome: Share your experience!
Hello, am new here. I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye. I manage q
Ongoing discussions - Nutrition / Metabolism / Endocrine glands
- Difficult Diagnosis
I have been going to my GP for 3 years complaining about the same hormonal issues. I have recently had horrific headaches and vision issues lasting over a month. I have kicked off and practically b
- Gout - Allopurinol and side effects?
My partner has been living with the condition of gout long term alongside with autoimmune, heart and many other diseases. Obesity has been a life time battle but after a serious attack of gout the h
- Alpha-1 Antitrypsin Deficiency - Have you been diagnosed?
Hi is there anyone with alpha 1 d t on here