Can't stand Crohn's anymore

https://www.carenity.co.uk/static/themes-v3/default/images/en/header/crohns-disease.jpg

Patients Crohn's disease

11 answers

137 views

Topic of the discussion



Posted on

Pain, cramps, bleeding, having to run to the loo every 5 minutes. I'm tired of this!

Beginning of the discussion - 03/03/2020

Can't stand Crohn's anymore


Posted on

@napoleon I understand how you must be feeling. I felt completely alone after my diagnosis and it's hard to cope with the symptoms. What has helped me is trying to manage my stress through breathing exercises and trying to keep moving when not in a flare-up. Getting out the house for a brisk walk every day helps keep my spirits up and can't be bad for the body! And talking with others on here when I can helps too, of course.

Can't stand Crohn's anymore

• Community manager
Posted on

@napoleon Hello napoleon, I'm sorry you're feeling unwell. Chronic conditions can be truly isolating and the symptoms can be difficult to handle when you feel like you are alone.

@Zoe1565‍ thank you for your comment. Those sound like some helpful coping strategies.

Does anyone else have any strategies to cope with their symptoms day-to-day?

Take care,

Michael

Can't stand Crohn's anymore


Posted on

@Michael_B I think it depends on the person, of course, but for me, stress is really a stressor. So for me I try to do everything I can to reduce my stress. So I try do so a session of stretching, yoga and meditation at least every other day.

Can't stand Crohn's anymore


Posted on

@Zoe1565 I had the same problem until I perforated my bowel.i had emergency surgery and had a stoma bag.two years later had the stoma bag reversed and now have a normal life again.surgery was frightening but worth it in long run please discuss with your consultant

Can't stand Crohn's anymore


Posted on

@Keithc that's great to hear that you're doing better! So you had the stoma and then had it removed later?

Can't stand Crohn's anymore


Posted on
Yes I had a stoma bag after I had a perforated bowel. The surgeon left 9 inches of large bowel and removed the rest. Had stoma bag for year then the stoma developed a hernia and blocked so rushed back in and west country top surgeon did a reverse operation and removed the stoma bag and attached small intestine to end of large bowel.have to have iron infusion every 6 months but other than that ok
Can't stand Crohn's anymore


Posted on

Hi i'm new here not new to the crohns though 😭😭🤣🤣 im getting fed up of the fatigue big time! Where to start had terrible pain, cramps the lot whole shitzbang for about 6-8months couldnt move of my mums sofa because of the weight loss lack of energy and everything out both ends and my bones nearly popping through my skin and after several trips to the hospital and sevral false diagnosis they finally found that i had crohns i was 14 at the time now i'm 31 have a 7 yr old child and had an ileostomy bag for 5 yrs which was supposed to be temporary for a yr but here i am still have it not to much pain anymore but the leaks and constant changing an fatigue i feel like i wake up to waste any energy i can find on changing the bag or emptying it every 2-3hrs at night then when my kid wants my attention in the day my fatigue is sooo strong i find myself talking like some sort of zombie dealt with it this long but am now literally at the stage of crying because of the damn fatigue and feel like i'm missing out on part of my childs childhood or i'm in it an just come across as a really moody roll their eyes mummy when lol i'm actually having to roll my eyes to stay focused and awake how is everyone else doing with their fatigue?? Please say use have some tips for me with this 🙏

Can't stand Crohn's anymore


Posted on

Hi has anyone on here tried CBD oil without THC, which seems to make people stoned. My daughter been on different treatments which did not work, She now on Stelara  injections for the last 6 months, however she starting to feel unwell more frequently the last couple of weeks. Thinking it not working as well now. I have read up on CBD oil, would like advice from someone who has used it.

Can't stand Crohn's anymore


Posted on

@Thor15 I'm interested in this too, there was a discussion on here about it a few years ago but no one really had anything to share on it, but I think that was a bit before the CBD trend really kicked off. If I find it I'll tag you in it.

Most commented discussions