Emery-Dreifuss muscular dystrophy
Forum

Current topics:

• - Leg swelling
  I had cellulitis week before christmas had 12 day antibiotics took redness away but leg still terribly swollen. Checked for dvt at ane on 22nd december had injection in stomach and following day had u
• - Dupuytren's Contraction
  HI New on here anybody got Dupuytren's love to here how you manage your daily life 
• - Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome
    Delphine's testimonialYears of diagnostic uncertainty facing Ehlers-Danlos Syndrome   When I was a child, I was already in pain. Back pain, stomach pain. I thought it was the same for everyone

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak

Current topics:

• - Telemedicine and COVID-19: What do you think?
  Hello everyone, How are you today? In recent months following the COVID-19 crisis, we've seen the NHS and health care industry turn more and more to telemedecine. Now, GPs and other health professi
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today?  The pharmaceutical groups Pfizer (USA) and BioNTech (Germany) announced on Monday 9 November that their vaccine candidate is 90% "effective" in preventing Covid-
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay positi