Back

Erythropoietic protoporphyria Forum

  •  1 member
  •  14 discussions

Medical fact sheet

Erythropoietic protoporphyria

All
Living with a rare disease
Living with diseases of nutrition, metabolism and endocrine glands

 Living with diseases of nutrition, metabolism and endocrine glands

Severe B12 deficiency and malabsorption

avatar lesmal

avatar lacemaker

avatar Somya.P

 Living with diseases of nutrition, metabolism and endocrine glands

How do you take care of your pancreas?

avatar lesmal

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar unhappy

 Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

 Living with diseases of nutrition, metabolism and endocrine glands

Difficult Diagnosis

avatar JMouzac

avatar jieyang-en

avatar Tontnella

 Living with diseases of nutrition, metabolism and endocrine glands

Gout - Allopurinol and side effects?

avatar Courtney_J

 Living with diseases of nutrition, metabolism and endocrine glands

Alpha-1 Antitrypsin Deficiency - Have you been diagnosed?

avatar Courtney_J

 Living with diseases of nutrition, metabolism and endocrine glands

Living with obesity: On a daily basis, what would you like to change?

avatar jessyoucan

avatar ZebLo1

 Living with diseases of nutrition, metabolism and endocrine glands

Addisons Disease- Primary Adrenal Insufficiency

avatar JosephineO

avatar aglowlady

 Living with diseases of nutrition, metabolism and endocrine glands

Parathyroidectomy

 Living with diseases of nutrition, metabolism and endocrine glands

Hello

avatar Leislei

Give your opinion

Survey

Satisfaction survey

Survey

What do you think about the Carenity Forum and community?

Survey

How do you use Carenity? Share your experience!

Survey

How were you diagnosed?

Articles to discover...

Mental health at work: how to recognise the first signs of poor mental health and take care of yourself

10/10/2025 | Advice

Mental health at work: how to recognise the first signs of poor mental health and take care of yourself

The truth about vaccines: Here’s what really happens if you skip your shots

04/10/2025 | News

The truth about vaccines: Here’s what really happens if you skip your shots

Antibiotics: What side effects should you look out for to protect your health?

13/09/2025 | News

Antibiotics: What side effects should you look out for to protect your health?

Medication leaflets made simple: Here’s what you need to know to stay safe

12/09/2025 | Advice

Medication leaflets made simple: Here’s what you need to know to stay safe

Intuitive eating: Can listening to your body heal your relationship with food?

06/09/2025 | Nutrition

Intuitive eating: Can listening to your body heal your relationship with food?

SSRIs: Are these antidepressants right for you?

05/09/2025 | News

SSRIs: Are these antidepressants right for you?

Back from summer? Here’s why a gentler return to routine matters

30/08/2025 | Advice

Back from summer? Here’s why a gentler return to routine matters

Meditation for chronic illness: A beginner’s guide to healing the mind and body

23/08/2025 | Advice

Meditation for chronic illness: A beginner’s guide to healing the mind and body