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Patients Fibromyalgia
Do you have any other conditions related to fibromyalgia?
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diaryofadisability
i started writing a blog today on living with fibromyalgia might be worth a read maybe please share everywhere i want to help people diaryofadisability.wordpress.com
happyhippygirl
Good advisor
Yes I get that,you no what you want to say,but it just don't come out,never new it was Fibro fog,cheers,for a few years I did not belive I had it,but get pains a lot more now,
happyhippygirl
Good advisor
I find I can not sleep if I go bed early,so I don't go to bed till 1.30 am or 2.30 am,I nor get up at 9.30 am but last 2 days been wakeing at 8.0 am. But last 2 nights I got rest less legs,never had this before,not nice,I get up and walk about,
MissFibro
Good advisor
I definitely also experience the migraines and the restless legs. I also have UC. There is so much that is not understood about this disease, it's fascinating to me. I think there must be so so many who are misdiagnosed and who are struggling. There really needs to be more research done. Hopefully some day we can all raise awareness and get things done!
petere
Fibro??? if it is, when diagnosed about 16yrs ago was told "I think you have onset of F/m"..I am now in a position of not wanting to go to bed as lying down makes whatever it is 10 times worse, every part of me aches and hurts, even my bones, any joint movement causes extra pain, get leg cramps and have to get up, Tried stretching exercises but to painful, the worst part is very bad quality of life, don't want to be taking pain killers all my life, I've survived with brilliant help from NHS, Triple by-pass surgery, throat cancer,pheumonia,abdominal aortic abdomen aneurysm op and lots of infections but this what's going on with me now is totally spoiling whats left of my life, and at 77 I want to enjoy it not be in constant pain......
Courtney_J
Community managerGood advisor
Hello everyone,
How are you doing? Have you seen this older discussion?
Often fibromyalgia occurs alongside other conditions such as IBS, CFS, migraine, intersitital cystitis and other bladder conditions, joint disorder, anxiety and depression, etc.
Do you have any other conditions besides your fibromyalgia? Which condition appeared first? Do you think there could be a link?
@Calia160 @Carolinem @Cookie 321 @Smiler383 @gertyb @Rozanne @Linda456123 @Kimmy64 @Saskia @Hursttracey @FibroClaire @Janepg @JoBlond @Raazia @tbtina1 @MariaB @Simonr3585 @Rhianon @Nutmeg
Feel free to share here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
Carolinem
@Courtney_J
Hello I have heart condition but don't think it linked .
Can I ask a question does anyone have bad sweats my hair is constantly wet with sweat running down my head it getting me down does anyone have any cures for that not botox lol thanks in advance.
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Caroline murray
Rozanne
Good advisor
I have had depression for many years, Fibro myalgia has made it worse. I was diagnosed with diabetes a month after my Fibro diagnoses. I also have IBS and CFS.
@Carolinem I also battled with bad night sweats. I realised they only occurred when I didn't take my Vitamin D supplement. Perhaps that is something you can look into?
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Rose
Kaz1960
Good advisor
I’m the same some days I could walk a marathon clean my home top to bottom ,iron,cook ets ets then a day after I’m kna@@ed just need to sleep ,I’m lucky I have a supporting partner who under stands I need to sleep.I’d give any thing to get rid of the tiredness it really is horrible,I could just about manage the pains if I wasn’t so tired. X
EstelleM
I've had fibromyalgia over 26 years and as I've reached my 70's things have worsened. Bladder and bowel problems. Chronic pain and problems with my legs as well as my eyes. The chronic fatigue and depression as well as brain fog but I keep strong and carry on. It's hard that you look WELL and people don't see beyond that. Fortunately I have a very caring and understanding husband. I push myself and enjoy my grandchildren but then after a few days I crash and need to rest.
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Margarita_k
Community managerGood advisor
Fibromyalgia is a complex condition with numerous symptoms that can also be found in other illnesses, which makes it difficult to establish a correct diagnosis quickly.
Moreover, people with fibromyalgia tend to have other conditions that affect different body systems. This can have a strong impact on the choice of treatment and care pathway in general, and affect patients' everyday life.
Here are 7 health conditions that patients with fibromyalgia risk to develop:
1. Migraines
A significant number of people with fibromyalgia also experience migraines and/or tension headaches, says Robert Duarte, MD. "An underlying disturbance in the brain chemicals serotonin and norepinephrine plays a role in causing headaches and fibromyalgia," he says.
Antidepressants that target these brain chemicals may relieve migraine pain, he adds. Tension headache may also respond to biofeedback.
2. Autoimmune diseases
Up to one-quarter of people with inflammatory autoimmune diseases—including rheumatoid arthritis (RA), lupus, Sjögren's syndrome, and ankylosing spondylitis—also experience fibromyalgia symptoms. The precise nature of this connection is not yet understood.
Fibromyalgia is not an inflammatory disease, but some research suggests that RA and other inflammatory diseases may somehow increase the risk for fibromyalgia.
3. Restless legs
Sleeplessness and other sleep problems are common for fibromyalgia patients, says Lesley Arnold MD, a psychiatrist at the University of Cincinnati College of Medicine. Restless legs, or the overwhelming urge to move your legs when resting, may be up to 11 times more common in people with fibromyalgia than those without it.
Exactly how the two are linked is not fully understood, but many fibromyalgia treatments also improve restless legs, not to mention overall sleep quality.
4. Irritable bowel syndrome
Irritable bowel syndrome (IBS) is marked by abdominal cramps and bouts of constipation and/or diarrhea. Between 30% and 70% of people with fibromyalgia have IBS too.
"Like fibromyalgia, IBS is a pain syndrome," says Dr. Arnold.
5. Pelvic pain
People with fibromyalgia are more likely to report pelvic pain, bladder irritability, and menstrual cramps, and some of the medicines that relieve fibromyalgia symptoms can also ease these other pains.
More research is needed to understand how these pain conditions are related to fibromyalgia.
6. Depression and anxiety
More than half of people with fibromyalgia also experience mental or emotional problems, such as depression and anxiety, at some point in their lives. "It is less of a causal or chicken-and-egg relationship," Dr. Arnold says. "(But) they may share common, underlying causes."
A deficit of the brain chemicals serotonin and norepinephrine is involved in both mood and pain disorders, she says. Many medications used to treat fibromyalgia are also antidepressants.
7. Obesity
"Obesity and fibromyalgia share a complicated relationship, and it's one that we can't ignore," says Dr. Arnold.
Many people with fibromyalgia lead sedentary lives due to their chronic pain, and a lack of regular physical activity increases their risk of becoming overweight or obese.
"Being overweight places more mechanical stress on your joints, which can cause more pain and aggravate the fibromyalgia," Dr. Arnold says. Plus, fat stores are pro-inflammatory, which can also exacerbate pain.
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Are you suffering with any other conditions apart form fibromyalgia? Did you develop them before or after fibromyalgia?
How does it affect your treatment?