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Krabbe disease Forum

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Medical fact sheet

Krabbe disease

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Living with a rare disease
Living with diseases of nutrition, metabolism and endocrine glands

Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar Somya.P

Living with a rare disease

How were you diagnosed with a rare disease?

avatar Somya.P

avatar unhappy

Living with diseases of nutrition, metabolism and endocrine glands

Addisons Disease- Primary Adrenal Insufficiency

avatar StephenP198

avatar JosephineO

avatar aglowlady

Living with diseases of nutrition, metabolism and endocrine glands

Severe B12 deficiency and malabsorption

avatar lesmal

avatar lacemaker

avatar Somya.P

Living with diseases of nutrition, metabolism and endocrine glands

How do you take care of your pancreas?

avatar lesmal

Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

Living with diseases of nutrition, metabolism and endocrine glands

Difficult Diagnosis

avatar JMouzac

avatar jieyang-en

avatar Tontnella

Living with diseases of nutrition, metabolism and endocrine glands

Gout - Allopurinol and side effects?

avatar Courtney_J

Living with diseases of nutrition, metabolism and endocrine glands

Alpha-1 Antitrypsin Deficiency - Have you been diagnosed?

avatar Courtney_J

Living with diseases of nutrition, metabolism and endocrine glands

Living with obesity: On a daily basis, what would you like to change?

avatar jessyoucan

avatar ZebLo1

Living with diseases of nutrition, metabolism and endocrine glands

Parathyroidectomy

Living with diseases of nutrition, metabolism and endocrine glands

Hello

avatar Leislei

Give your opinion

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Living with obesity: Do you feel supported in your care and treatment?

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What do you think about the Carenity Forum and community?

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Help shape the future of Carenity!

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Become a Carenity Ambassador – Help our community thrive!

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On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

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How were you diagnosed?

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