COVID-19 and Lupus: How is lockdown and the pandemic impacting your lupus?

@Courtney_J I was actually contacted by the NHS to inform me that I'm at high risk. I had heard they would be doing that, but I didn't think I would be contacted so quickly! They've told me to 'shield' myself for 12 weeks! I'm not excited about it as I don't think anyone enjoys being cooped up indoors, but I know that it's for my protections. Trying to see the bright side of things.

I've heard that there's going to be a run on plaquenil because of the pandemic. Has anyone heard anything about this? Has anyone had a hard time getting it at the pharmacy? I will need a refill soon so I'm a bit worried...

I was contacted by my GP a week ago and got a letter on.. 31march.   A week earlier I'd put myself onto the Covid19 government list, got a text from them today 01april

Shielding is sort of working, we're successfully using separate loos during the day and night.  When we're in a room together we've got a 2m ish space, window open when it's not cold.  Sleeping in separate beds, bedroom is a non starter.  Eating food also the same as I don't want to eat on my own!  My son hasn't been in any shop, his last mix was with his mates at school, and my husband only goes out once a week for shopping and my meds.  He uses a sanitizer every time he's been in a shop. 

I feel safe with what we, as a Family are doing. 

Hello everyone, how are you doing in self-isolation? 

Hello @wolfloup‍, thank you for your comment. Have you seen our recent article on hydroxychloroquine and the impact that its use for treating COVID-19 is having on lupus patients? In it we summarise the results of our survey on the subject and share what our Carenity members are experiencing across the globe. I think you may find it interesting!

Plaquenil as a treatment for COVID-19: What are the consequences for chronic patients?

Feel free to take a look and share you thoughts in the comments below the article!

Take care,

Courtney

@Courtney_J Thanks for the article, it was interesting to read the results of something that I filled out and see where what I'm going through is similar to others' experience. Hope everyone is doing well and staying sane through this!

Hi there, I actually had a problem getting my plaquenil the other day, the chemist was only able to fill half of it... I'm guessing it has to do with Trump and all of that nonsense from a few weeks ago. Has anyone else had a problem? 

I have a lot of anxiety and it's hard to stay alone with just me and my thoughts. Usually I'm don't go out much but being forced to self-isolate is very different. It's like a cage and the outside seems tempting but scary in the same time. Not sure if I make any sense... 

@ClaireTF Hello ClaireTF, thank you for commenting. I'm sorry you had a problem getting your prescription. Were they able to fill the rest later?

Has anyone else had a problem with this? How are you during in lockdown?

@upnorthhere‍ @lupus79‍ @iwillbeatthis‍ @allie1983‍ @Shellington79‍ @Kelly246‍ @Jack.Mcm‍ @Holly12‍ @Jazzib58‍ 

Take care,

Courtney

Hi All,

No issues with my wife's medicines and despite a flare up issues there has been no problems, anti-biotics covered the infections. No problems with getting quinine only I had issues with some diabetic medicine, my brother running short on his injections as well. But my wife had a long phone call from our practice as a follow up for the 'vulnerable patients'  status but we had no issues. So all in all in isolation awaiting our release so we can go to our caravan in Norfolk, we can isolate there as well as at home. One thing the GP did state that the lock down was to be extended for the vulnerable and my wife is not allowed out the house, not even the garden total isolation. Thought it a bit OTT and we do go for a short walk with the dog in the evening when nobody is about, getting some nice fresh air!

Stay safe!

Hello everyone,

How are you today? 

How are you holding up in lockdown? Have you noticed any flares or changes in your lupus? Is it better? Is it worse? Have you heard anything about the vaccine?
@amanda397‍ @Cindy1‍ @Tjsharples‍ @upnorthhere‍ @lupus79‍ @iwillbeatthis‍ @allie1983‍ @Shellington79‍ @Fay#:o'Connor‍ @Kelly246‍ @Aineokeeffe‍ @Jack.Mcm‍ @Holly12‍ @Jazzib58‍ @Cazza55w‍ @Jooliver‍ @Lilread92‍ 

Feel free to share! We are all here to help each other!

Take care,
Courtney