Lupus Forum
Where is the medical research in lupus? Which treatments work against this autoimmune disease? How to adapt your daily life? Join our community of patients and their families to ask questions and get support.
Ongoing discussions - Lupus
Current topics:
-
- How do you manage your lupus fatigue?
Fatigue is a very common complaint of people suffering with lupus. Some people are tired already when they get up in the morning, others by the time they get home from work. Are you familiar with the
-
- Can lupus cause hair loss? How to cope?
Hi, has anybody with experienced hair loss? I lost a lot at one point and I continue losing some of it every time I brush my haire.
-
- Lupus and sun exposure: Can you tolerate the sun?
Hi all, I spent the other day outdoors in a friend's garden. I didn't think it was that sunny out but since then I've been in all sorts of pain in a terrible flare-up. It's never happened to me befor
See all the discussions
Current topics:
-
- Immunosuppressive drugs and Lupus
What immunosuppressive medecines do you take? Has it been working well for you? And what about side effects? Thanks in advance for sharing your thoughts, remember that it can help others!
-
- What is your opinion of your current treatment?
Hello, In this discussion you can share your opinion on your current treatment for lupus: do you find it effective? how long have you been taking it? do you have any side-effects? would you lik
-
- Benlysta
Hi there, My rheumatologist has recently talked to me about a drug called benlysta or belimunab. I'd like to know if anyone has already taken this drug and I'd like to ask for your opinion on it, cau
See all the discussions
See all the discussions
Ongoing discussions - Cold Agglutinin Disease
See all the discussions
Ongoing discussions - Infection / Inflammation / Immune system
Current topics:
-
- Biotherapy and COVID-19: Has the virus had an impact on your treatment?
Hello everyone How are you doing? Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune responses (immunosuppressants).Patients who use these treatments a
-
- Hello everybody !
Hello, how are you ?
See all the discussions
Ongoing discussions - Muscles / Skeleton / Joints
Current topics:
-
- Pregablin
Hi Im new here. Just wondering do many or any of you take pregabalin for pain? If so have you gained weight? Thank you x
-
- Life after a joint replacement: Share your experiences and advice!
After number of years with osteoarthritis . I have had no choice but to have a hip replacement . Any one who had any helpful tips, recommendations or just a friendly ear for people to chat to all is w
-
- Osteoarthritis and pain
How to limit pain? Share your tips in this post!
See all the discussions
News and information
Fact sheet
Testimonial