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Patients Lupus
Gaining control of Lupus and life.
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eleventwelve
Good advisor
@Smelly I really understand how you're feeling. I always say my lupus is like a crazy stranger I'm forced to feed and lodge. Periods of quiet and then boom, it pops up somewhere else. Have you been better lately?
iwillbeatthis
@eleventwelve You describe it perfectly! If only I could put my lupus up for eviction!
upnorthhere
@Smelly My goodness, you've really been through it all! Fortunately (or not really as it's no picnic), lupus is my main illness. I agree, I wish the treatments were better. I think there's a lack of knowledge and maybe of research on it. Hopefully that will change with time. Wishing you well! x
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Smelly
After living with Lupus for 30 years I can honestly say that it never ceases to surprise me. My SLE is random and attacks different areas of my body, you never know what's coming next. I've lost my big toe owing to malignant melanoma, a beautiful baby who was a twin and the surviving twin is now 12 years old. I've had 5 bowel resections, the bottom lobe of my right lung removed owing to non small cell carcinoma, thrombo phlebitis, the lenses in my eyes replaced, 5 stomach ulcers,.... I could go on but what's the point. My life is controlled by my crazy immune system. My family ate amazing but i know I'm a burden, i just wish the medication was more effective.