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Why Am I So Tired with Lupus? Understanding Fatigue vs. Flares

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Why Am I So Tired with Lupus? Understanding Fatigue vs. Flares

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damienprvt

10/09/2026 at 15:37

damienprvt

Last activity on 10/09/2026 at 17:16

Joined in 2026

Patient, Diabetes (Type 1) since 2026

4 comments posted | 1 in the Lupus Forum

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Hello,

I’ve been feeling really tired lately and I’m starting to wonder if it’s because of my lupus. Even when I sleep well, I can still wake up feeling exhausted.

Some days I have enough energy to do things normally, and then suddenly I feel completely drained. It’sf quite frstrating because I don’t always know if I should push myself or just rest.

Does anyone else with lupus feel like this? How do you know when your fatigue is related to a flare?

I’d love to hear how you deal with it bcause sometimes I feel like people around me don’t really understand how tired I can be.

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Razar.M

10/09/2026 at 16:08

Razar.M

Last activity on 10/09/2026 at 17:16

Joined in 2026

Patient, Seborrhoeic dermatitis since 2026

5 comments posted | 1 in the Lupus Forum

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Hi Damien,

I’m sorry you’re going through this. 💜 Lupus fatigue can be incredibly overwhelming, especially when you’ve slept well but still wake up feeling exhausted. It must also be frustrating when your energy changes so suddenly and people around you don’t fully understand what you’re experiencing.

I’d love to hear from the community - how do you recognise when your fatigue may be linked to a flare, and what helps you cope when your energy is completely drained?

@Donna-alwayssore @Maddiesimms7 @Medic1969 @Charisse @Agness @Willy45

Any advice or personal experiences could really help someone else who is struggling with the same thing.

Take care everyone. 🌷

Razar.M

Why Am I So Tired with Lupus? Understanding Fatigue vs. Flares https://www.carenity.co.uk/forum/lupus/living-with-lupus/lupus-6248 2026-09-10 16:08:39

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21/11/2016 at 15:19

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21/11/2016 at 15:19

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