Metachromatic leukodystrophy Forum
Ongoing discussions - Metachromatic leukodystrophy
Current topics:
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- Gout - Allopurinol and side effects?
My partner has been living with the condition of gout long term alongside with autoimmune, heart and many other diseases. Obesity has been a life time battle but after a serious attack of gout the h
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- Alpha-1 Antitrypsin Deficiency - Have you been diagnosed?
Hi is there anyone with alpha 1 d t on here
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- Living with obesity: On a daily basis, what would you like to change?
Hello everyone, If you could change something about your daily life, what would you choose? A symptom or complication that bothers or frightens you? The judgemental looks of others? Feel free to joi
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Current topics:
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- What is the most frustrating or difficult aspect of living with a rare disease?
Hello everyone, How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
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- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak
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Current topics:
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- Coronavirus (COVID-19) - information and precautions
Hello dear members, I thought I would open this discussion as the Coronavirus (COVID-19) has been a strong news topic of late and is a pertinent topic for us here, as those with chronic health conditi
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- Telemedicine and COVID-19: What do you think?
Hello everyone, How are you today? In recent months following the COVID-19 crisis, we've seen the NHS and health care industry turn more and more to telemedecine. Now, GPs and other health professi
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- Are you going to continue to wear a face mask after you've had both vaccine jabs?
I've been thinking about this since I had my first jab 3 weeks ago. I see many advantages in continuing to wear a face mask ~LESS pollution, less bugs leading to chest and other infections, lowering
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