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How did you handle your myasthenia gravis diagnosis?
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MaggieMG
MaggieMG
Joined in 2022
@Courtney_J It was overwhelming for me. I'm still not sure today that I understand myasthenia and what's happening in my body. I don't know if it's hereditary or if I've brought it upon myself. I have so many questions and there's not much information out there beyond the NHS site or other health sites describing it.
lilyofthevalley
lilyofthevalley
Joined in 2022
I still can't get used to the thought of me being ill. It was so unexpected and so sudden. I used to do so much every day and now I have tp get used to another life, which is far from what I expected it to be like :/
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MaggieMG
MaggieMG
Joined in 2022
@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.
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MaggieMG
MaggieMG
Joined in 2022
@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.
See the best comment
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Joined in 2020
Hi everyone,
How are you doing?
How did you feel when you were diagnosed with MG? Were you given all the information you needed to understand it and its treatments? What about support?
Feel free to share your thoughts and experiences with us here!
Take care,
Courtney