Vestibular Migraine due to Fibromyalgia

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Katzie

Edited on 26/08/2024 at 19:16

Katzie

Last activity on 15/05/2024 at 10:42

Joined in 2024

2 comments posted | 2 in the Living with fibromyalgia group

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Hi Everyone, I hope you are having a good day today.

I was diagnosed with Fibromyalgia in 2007 and have crawled my way through over the years ( hard work). I have now been diagnosed with Vestibular Migraine. This started with what I call BPPV episode that I have had before - it leaves me with a residual off balance feeling that causes ear pain, concentration issues, a dizzy brain foggy feeling, tingling in ears and tinitus .... the diagnosis has thrown me a little as it seems related to the FM. I have been off kilter now for 46 days and tbh, cant seem to get it to settle. I am on my 5th week sick from work and feeling confused, firstly by the diagnosis and is this off balance going to go away?

Are there any of you who have Vestibular Migraine and what is your experience ?

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Somya.P

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10/09/2024 at 16:27

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Somya.P

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Last activity on 12/06/2025 at 12:09

Joined in 2023

638 comments posted | 17 in the Living with fibromyalgia group

51 of their responses were helpful to members

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Hi there, @Katzie

Thank you for sharing your experience with us. I'm really sorry to hear what you're dealing with, it sounds really tough to manage, especially with the brain fog, ear pain, and dizziness.

It seems like some of our members might have missed this discussion, but I'm sure others in the community can relate to what you're going through:

@delnia.a @Laurel23 @EHill0853 @lucy3590 @Rach49 @MichelleLJ @katie_mrsdn @Janen28 @Shoo55 @Bunsan @lala170570 @Josiejo144 @Nazmaatcha @Catirvine78 @Charlton97 @steve101x @Gigi15 @LouLou1971 @Michelle75 @Dukesave @Diamondartcrazy @Flossfrack @Alim244 @Parranquet @Nuls22 @ziggy7678 @Sam4095 @MellyFlay @Un(lucky)ducky @Allymal @Jhiggy64 @Liverpoolsm1 @nikinoodles @PyroLind @Tufnellpark @Sweetsista4u @ChristinaB82 @janv-22 @Nanakt @55westo @Pete1966 @angelaconnor1 @Debbiet @Ombliss22 @Laura84 @lisa.staley @Kate44 @HelenHarper @Sammimo @jinksy @Katyloubee82 @Margy60 @KymPaterson @Mandymoo5467 @Maryquitecontrary @GILL18 @Foxxxxy @Kezza3511 @Craftyjourney2 @Janineholland @Pebbles113 @MrsMelSerag78 @Mckkirby @Sue1912 @Darren77 @Torrypink @Lauren06 @Khanie @Tiger1924 @Chloe85 @Grisdale @Rwthi1 @Robatkins @CandiceT @Kjcherrybomb @TracyF15 @Adshel1985 @DeeHarry05 @Wordieboo @WhiteWolf @MSWarriorAj @Cordeliamcgurk27 @Siobhanb @Herb77 @AdeleBaker @Max-551 @Linds58

Has anyone else been diagnosed with vestibular migraines, or experienced something similar? How have you managed the symptoms, and did anything help with the off-balance feeling?

Please feel free to join in the discussion and share your experience—it could be really helpful to other members too!

Take care,

Somya from the Carenity Team 🌼

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Somya from the Carenity team 🌼

Vestibular Migraine due to Fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/vestibular-migraine-5312 2024-09-10 16:27:51

Vestibular Migraine due to Fibromyalgia

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