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Caregivers for patients with Parkinson's disease
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7 answers
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Topic of the discussion
Posted on 17/11/2016 10:51
If you have a member of your family who is suffering with Parkinson's disease, I invite you to share your experience in this discussion.
Exchange advice and information on how to better help our loved ones with Parkinson.
Beginning of the discussion - 28/11/2016
Caregivers for patients with Parkinson's disease https://www.carenity.co.uk/forum/parkinson/living-with-parkinson/caregivers-for-patients-with-parkinsons-diseas-1449Posted on 28/11/2016 17:01
Husband Peter cares for me as I have advanced parkinsons. Post for him as he dyslexic.
he helps me a lot but makes me try things myself.
we have 3.hours weeklye respite p enjoyS a bike .ride. Carers trust.
we get out and about with my wheelchair, dont give Up.
Posted on 29/11/2016 11:39
Thank you very much for sharing your story with us @Brewes!
It's great that you have your husband's support and help!
Anyone else has something to share or to ask? Don't be shy, we are here to help each other.
Posted on 08/12/2016 18:01
@MrsPeanut, @Peter888, @rooneytoomey, @Daisysnan, @EmmyJay, what could you tell us about helping your relative/friend with Parkinson's disease?
Posted on 11/12/2016 22:56
Hello i am the one with parkinsons disease, ad the frustrating part about it is, that somedays yo may have a period were you feel absolutely fine, and the peope who care for you often seem to think that youare ok and that you dont really have a problem, but they dont often see the times when i am unable to walk, when you are weak and your dexterity and co ordination are such that you can not hold on to something without dropping it,
And so i feel as if i am expectedat times to carry out tasks that are often too difficult or impossible to do, because on the times that i am feeling relativelrry out those tassy ok, i do m best to carry out those tasks.
Now I am not bitter about getting parkinsons as very often in life you simply have to play the hand your dealt, but i could do with a little more understanding
Posted on 12/12/2016 10:17
Agree mickey.
we all have good and bad parky days. The bad ones can be really bad!
brendax
Posted on 12/12/2016 10:18
Agree mickey.
we all have good and bad parky days. The bad ones can be really bad!
brendax
Posted on 22/10/2019 10:52
I'm a carer for my father who was diagnosed two years ago. I admit I feel guilty sometimes because I just want to have a "normal" day. It can be really hard sometimes to be a carer because a lot of responsibility falls on you, but no one really asks how you are or if you need something.
I don't resent my father at all, but sometimes the situation is just overwhelming. I know no one will see this but just felt like talking about it somewhere.