The Invisible Struggles of Parkinson’s: How Do You Explain Symptoms Others Can’t See?

Hi everyone,

I hope your are doing alright today 😍

@Joykay @Osidge @hjames56 @Cynthia B @Shaking Eagle @Art72kl @Shayman @PositivePen @caseyk @smudge1 @Jamie65 @Kazzy10 @Haynesmother @Pickle17 @Shellshake54 @Mollyb @orchid @Barbarapotter @Jani54 @nacnye @janpen @Jayne40 @runwell @darts180 @franticwife @Formum123 @maryrd @EmmyJay @Tennysonman @paulantony @blanky @catherine123 @OliveJ @wolfgang @rooneytoomey @curlyhead @Cracker47 @CarlGover @emilie+p-uk1 @Bettyblue10 @Carolann54 @Gailwilk @Kareninez @Debrer @Chynnarose @Carol56 @JosephineO @HelenJane369 @Ishtar @lion997 @Robin12 @STEVIE1010 @ShropshireDriver @HelsBels77 @CarolineGilbert @davidcraven448

Living with Parkinson’s isn’t just about the visible symptoms. So many aspects of the condition — like fatigue, anxiety, pain, brain fog, or sleep issues — often go unnoticed by others, even though they can be just as difficult to manage.

We know how frustrating it can be when people assume you're fine just because you "look okay."

🙁 Have you ever felt judged or misunderstood because your symptoms weren’t visible?
🗣️ How do you explain your condition to people who don’t really understand it?
🤝 What helps you feel acknowledged and supported when you’re struggling?

Feel free to share your experience — your words might really resonate with others here 💬

Warmly,

Somya.P, from the Carenity team