Prostate cancer: What advice would you give to others?

I was very well informed by my consultant, I was resigned to not being able to ejaculate and probably not get erections. The only thing I wish had been informed about as it came as something of a shock was the loss in penile length.

I was kept fully informed by my consultant, including problems with sex and loss of length due to hormone treatment. But hey, now I've finished my treatment, it's growing again.

If you have to have a Prostate Biopsy ensure you are given Antibiotics before and after treatment or you risk having Sepsis which often is not recognised and can quickly lead to all your organs shutting down and then being terminal.

I was originally misdiagnosed  and 2 months later told without  medical support at clinic.

I now have regular psa tests and have been told by 2 urologist and a G.P that everything is fine and my last PSA reading 1.0 which is normal.

So I am just getting on with things in my life .I dont have any plans, but how can we living with covid19  and being forced into lockdown without any knowledge of what the future holds,until  we get vaccines. 

 And learn to accept  a new way of living and learning not to be too selfish.  But instead learning to value life and respect each other more and not be greedy .

Had my interim 6 monthly PSA blood test and it is still less than 0.01. Same result since Jan 2019. I had brachytherapy and radiotherapy, plus hormone treatment. Not long now before I'm discharged. Please don't give up hope, just go with your consultants advice.

Had my 6 monthly PSA test this week and pleased to say it is still >0.01 which has been steady since 2018

Hello everyone,

How are you today? 😊

Going through prostate cancer, from diagnosis to treatment and beyond, can be a challenging and quite scary journey. But sharing experiences can truly help others who are facing the same road.

If you've been through it, what advice would you give?

Are there things you wish you had known earlier?

What words of encouragement would you offer to someone newly diagnosed?

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Your insights and support can make a real difference. Let’s help each other out! 💙

Looking forward to reading your thoughts,

Somya from the Carenity team 🌼

I have had prostate removal surgery. And 6 and a Half weeks of Radiotherapy later when I had Healed up. The best advice l would give is.. stay positive and do whatever the Doctors tell you. There are no short cuts for prostate cancer. Stay safe.

I would advise a newly person newly diagnosed with Prostate Cancer to listen to advise and try and talk to people who’ve been there and gone through each of the alternative treatments available or offered. Try not to get bogged down in technical things and think about your future. Things are developing at a great rate and there is lots to look forward too. Talk to people.

We all know the shock when you hear the dreaded words , you have Cancer. My main problem was I couldn't understand how I had cancer but didn't feel unwell apart from more tired but put it down to age. Took a few weeks to come to terms with it, will stress don't bottle things up, talk with family or close friends. I didn't start feeling unwell till starting the treatment, not every one will get the side effects from the hormone treatment, myself have suffered quite bad, hot flushes, tiredness, lack of energy, managed mainly to keep the mood swings under control, the injections are bit painful but think of the end goal. Had my scan this week to put the marking tattoos ready for my radiotherapy to start on 3rd April. Think carefully what treatment you want don't get bullied by the surgens into having the prostate removed, go with what you are comfortable with, myself I'm having radiotherapy due to also having a ongoing spinel channel nerve damage , my consultant advised it would be more comfortable than having surgery due to legs being in a uncomfortable position for operation. There will be days and certain things where you will get very depressed and need time alone . It helped me doing 2 fundraising events to raise funds for prostate cancer research, first in November 60-mile in month, I ended up walking 164 miles then February I did a 56 mile walk in month, ended up 102 miles , was a great help been out on my own with the dogs . Take each day as it comes along and have faith and trust in your medical team