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Sandhoff disease Forum

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Medical fact sheet

Sandhoff disease

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Living with a rare disease
Living with diseases of nutrition, metabolism and endocrine glands

Living with diseases of nutrition, metabolism and endocrine glands

Severe B12 deficiency and malabsorption

avatar lesmal

avatar lacemaker

avatar Somya.P

Living with diseases of nutrition, metabolism and endocrine glands

How do you take care of your pancreas?

avatar lesmal

Living with a rare disease

How were you diagnosed with a rare disease?

avatar unhappy

Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

Living with diseases of nutrition, metabolism and endocrine glands

Difficult Diagnosis

avatar JMouzac

avatar jieyang-en

avatar Tontnella

Living with diseases of nutrition, metabolism and endocrine glands

Gout - Allopurinol and side effects?

avatar Courtney_J

Living with diseases of nutrition, metabolism and endocrine glands

Alpha-1 Antitrypsin Deficiency - Have you been diagnosed?

avatar Courtney_J

Living with diseases of nutrition, metabolism and endocrine glands

Living with obesity: On a daily basis, what would you like to change?

avatar jessyoucan

avatar ZebLo1

Living with diseases of nutrition, metabolism and endocrine glands

Addisons Disease- Primary Adrenal Insufficiency

avatar JosephineO

avatar aglowlady

Living with diseases of nutrition, metabolism and endocrine glands

Parathyroidectomy

Living with diseases of nutrition, metabolism and endocrine glands

Hello

avatar Leislei

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How were you diagnosed?

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Vitamin supplements without guidance: Why “more” is not always better

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Dopamine: What role does it play in motivation, mood, and daily life?

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Skin burning after corticosteroids: how to recognise and relieve this little-known syndrome?

09/01/2026 | Advice

Skin burning after corticosteroids: how to recognise and relieve this little-known syndrome?

Sleeping pills: A quick fix or a long-term risk for your sleep?

02/01/2026 | Advice

Sleeping pills: A quick fix or a long-term risk for your sleep?