Back

Patients Spasticity

Where is your spasticity?

183 views
14 times supported
20 comments

JosephineO

Community manager

07/03/2019 at 12:17

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 17 in the Spasticity Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Spasticity is a difficult condition that causes certain muscles to relax and contract which creates jerking movements. It is generally located in arms or legs.

Where is your spasticity located?

All comments

Go to the last comment

JosephineO

Community manager

07/03/2019 at 12:30

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 17 in the Spasticity Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@Sk8rGirl‍ @kyuuketsuki_kurai‍ @iian22‍ @Juliette‍ @Karen56‍ @Yank34‍ @HazelRutter‍ @thecaptainjohn‍ @kathy52‍ @Sandy12‍ @hayles‍ @BoneShaker‍ @Helenak‍ @Linz1978‍ @Tracey961‍ @Kencomax‍ @progressive‍ @FredaBurke‍ @Bagpuss66‍ @Halfpint26‍ @trish444‍ @George‍ @stuart10mcintosh‍ @andrewdodd‍ @Sallyford‍ @BShields‍ @Rarebits‍ @PatriciaGriffin‍ @Nanaclaire‍ @jamie‍ @Kazzeranne‍ @Desertflower‍ @Chooks‍ @GalDriver‍ @Beautiful_Disaster‍ @AndrewB‍ @pinklady‍ @CathBriggs‍ @Charlie74‍ @Jammieone‍ @grace2000‍ @TheWillow82‍ @Motaway‍ @CloththeGoth‍ @Blueribbon68‍ @Aprctr‍ @JanElliott‍ @StillSmiling‍ @LondonLiz‍ @Willow10‍ @chanty‍ @Paula11‍ @Psulsayhi‍ @scarletlady69‍ @Swipermonkee‍ @Fobelets ‍ @wifebund‍ @Angel511967‍ @Karen1976‍ @Lindseymarcy‍ @Florestina‍ @bouncy321‍ @LGriffin‍ @Rachie-chick‍

See the signature

Josephine, Community Manager

Where is your spasticity? https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/where-is-your-spasticity-2757 2019-03-07 12:30:45

Juliette

07/03/2019 at 14:00

Good advisor

Juliette

Last activity on 20/07/2025 at 15:34

Joined in 2015

35 comments posted | 2 in the Spasticity Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

Mine was in my calf. I had botox for it which took away the clonus.

Where is your spasticity? https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/where-is-your-spasticity-2757 2019-03-07 14:00:56

hayles

07/03/2019 at 15:21

hayles

Last activity on 01/07/2025 at 08:55

Joined in 2018

7 comments posted | 1 in the Spasticity Forum

Rewards

Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

My spacisity is nearly everywhere but mainly in my legs

Where is your spasticity? https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/where-is-your-spasticity-2757 2019-03-07 15:21:00

Sk8rGirl

07/03/2019 at 17:45

Good advisor

Sk8rGirl

Last activity on 02/01/2021 at 22:59

Joined in 2019

15 comments posted | 5 in the Spasticity Forum

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

My spascity is mainly in my legs, especially the right one. It goes straight as a board and hard as a rock. I can’t take baclofen and the tizanadin doesn’t seem to work. I take Botox which covers the pain but not the spascity. Ugg

Where is your spasticity? https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/where-is-your-spasticity-2757 2019-03-07 17:45:35

PatriciaGriffin

07/03/2019 at 22:14

PatriciaGriffin

Last activity on 18/02/2025 at 21:51

Joined in 2018

7 comments posted | 2 in the Spasticity Forum

Rewards

Committed
Explorer
Friend

View profileView Add a friendAdd Write

I take baclofen for my legs really works 1 a day half in morning half at night. MY MS nurse put me on them marvellous .

Where is your spasticity? https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/where-is-your-spasticity-2757 2019-03-07 22:14:29

Yank34

Ambassador

07/03/2019 at 23:43

Good advisor

Yank34

Ambassador

Last activity on 19/07/2025 at 13:57

Joined in 2015

292 comments posted | 10 in the Spasticity Forum

17 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

My spasticity affects both my lower limbs (from toes to groin), both my arms, (but can also include the right side of my neck, extending around/below the scapula-shoulder blade and right shoulder as well as my lower back. Luckily the majority of my spasticity is intermittent but always unpredictable. Unfortunately on a few occasions, especially when my spasticity has become extremely severe, this has a "knock-on" affect re: on my joints (i.e. ankles/knees), causing sudden, spontaneous movement way beyond their normal "range of movement"!! This actually happened 2 nights ago, in bed, when I woke up on 4 separate occasions, during the "early hours". Each episode lasted about 10-15 minutes, causing excruciating pain and complete inability to do anything but writhe in agony. About 5 years ago, swimming "lengths" in a private pool, luckily with my husband, a few metres before reaching the "deep end" (and rail), my right heel "attached itself" to my right buttock! I had no choice but to swim to the rail using 3 instead of my 4 limbs and wait about 5 minutes before it relaxed and "unattached itself"! I think I was in such a deep state of shock that I don't really recall this being painful!

See the signature

Ann

Where is your spasticity? https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/where-is-your-spasticity-2757 2019-03-07 23:43:42

Sk8rGirl

10/03/2019 at 03:04

Good advisor

Sk8rGirl

Last activity on 02/01/2021 at 22:59

Joined in 2019

15 comments posted | 5 in the Spasticity Forum

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

Are you still able to walk? I am so grateful that the pain isn’t agonizing. I get where my right leg won’t move at all. The baclofen makes me feel sick but perhaps I should try again. This is a great platform for us to tell our issues. No one would believe us!!

Where is your spasticity? https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/where-is-your-spasticity-2757 2019-03-10 03:04:09

Yank34

Ambassador

10/03/2019 at 18:23

Good advisor

Yank34

Ambassador

Last activity on 19/07/2025 at 13:57

Joined in 2015

292 comments posted | 10 in the Spasticity Forum

17 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Yes...…...I am 1 of the very "fortunate" people re: although only formally diagnosed with MS in 2013, MS was queried by a Neurologist I had to see privately (couldn't wait the 9 months to see 1 on the NHS), was erroneously diagnosed/treated for trigeminal neuralgia (TN) in the Spring of 1978. Between 1978 (the TN lasted, unremittingly for almost 2 yrs!) and 2013, experienced almost every symptom of MS but because it must have Relapsing Remitting (although these various symptoms began to "be experienced" for longer periods of time and increasingly more frequent/problematic from about 2005), I was very deeply "in denial" until I was in REAL TROUBLE! I can still walk, remain relatively independent but often walk like "I'm drunk", sometimes limp (to varying degrees) and often "not safe" to leave the house +/or drive...…..my MS is totally unpredictable but have learned (and still learning!) how to manage it in the best way possible - depending on what "it" is doing at any given time! I think I have "rambled on" long enough...…..absolutely great to "meet you" Sk8Girl - and perhaps we can start "talking" more regularly if you want? Totally agree with you - only people with MS can really "believe"/know/understand anyone else with this x

See the signature

Ann

Where is your spasticity? https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/where-is-your-spasticity-2757 2019-03-10 18:23:00

Pleasance

11/03/2019 at 09:43

Good advisor

Pleasance

Last activity on 16/05/2023 at 11:23

Joined in 2014

63 comments posted | 5 in the Spasticity Forum

Rewards

Good Advisor
Contributor
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Mine comes out in my legs, it can be horrible shaking. I take injections every couple of months and that does help.

@Yank34‍ I know where you are coming from, it can be so unpredictable from day to day.

See the signature

Pleasance

Where is your spasticity? https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/where-is-your-spasticity-2757 2019-03-11 09:43:54

PatriciaGriffin

11/03/2019 at 22:06

PatriciaGriffin

Last activity on 18/02/2025 at 21:51

Joined in 2018

7 comments posted | 2 in the Spasticity Forum

Rewards

Committed
Explorer
Friend

View profileView Add a friendAdd Write

I walk like I am drunk every day. Have to use a stick, can still drive but can sleep at night. I'm 69years old and was diagnosed when I was 66 Dr said I probably had it for a long time did have aching legs but I thought it was restless legs but my left foot started to drag that's how it began. I hate that I can't walk properly keep trying though. On baclofen and Gabpentin for legs.

Where is your spasticity? https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/where-is-your-spasticity-2757 2019-03-11 22:06:38

Members are also commenting on...

Unregistered member

21/11/2016 at 15:19

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!

See the best comment

Unregistered member

21/11/2016 at 15:19

See the best comment

Articles to discover...

17/06/2024 | News

Spasticity: Everything you need to know!

06/02/2019 | Advice

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

07/05/2018 | Advice

Fifteen percent of osteoporosis patients who take 'drug holidays' suffer bone fractures

19/07/2025 | News

Summer and sleep problems: how to get a better sleep despite the heat

16/07/2025 | Nutrition

Summer superfoods: boosting your health and staying hydrated

07/07/2025 | Nutrition

Inflammation and diet: Which foods to avoid and what to eat instead

05/07/2025 | News

Sun protection and chronic illnesses: How to stay safe in the sun

28/06/2025 | News

Screens and the brain: What are the risks of overuse and how can you protect yourself?