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CADASIL syndrome Forum

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  •  73 discussions

Medical fact sheet

CADASIL syndrome

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Living with a rare disease
Treatments for Cardiovascular diseases
Living with cardiovascular diseases
Living with kidney or urinary tract diseases

Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar Somya.P

Living with a rare disease

How were you diagnosed with a rare disease?

avatar Somya.P

avatar unhappy

Living with kidney or urinary tract diseases

Brain fog and chronic kidney disease: Have you experienced it?

avatar lesmal

Living with cardiovascular diseases

❤️ How’s your heart doing today?

avatar Mikejohn

avatar robjmckinney

avatar lesmal

Living with cardiovascular diseases

Fear of a second heart attack: How do you cope?

avatar lesmal

avatar robjmckinney

Living with cardiovascular diseases

Peripheral Arterial disease — Looking to connect with others

avatar astro123

avatar Somya.P

Treatments for Cardiovascular diseases

What do you think about statins? It is your treatment?

avatar Karen56

avatar robjmckinney

avatar Margarita_k

Treatments for Cardiovascular diseases

Statins' side effects

avatar robjmckinney

avatar astro123

avatar lesmal

Living with cardiovascular diseases

How to break the vicious cycle of stress and heart disease?

avatar lesmal

Living with kidney or urinary tract diseases

Chronic kidney disease: How do you manage fatigue?

avatar lesmal

Living with kidney or urinary tract diseases

CKD: How has it changed your daily routine?

avatar Somya.P

avatar lesmal

Living with cardiovascular diseases

Implantable cardioverter defibrillator (ICD)

avatar STEVENMILLER

avatar mrchipps

avatar Polina.K

Treatments for Cardiovascular diseases

Stents

avatar Carlfish

avatar Stent1

avatar lesmal

Living with cardiovascular diseases

Cardiovascular diseases and diet

avatar mrchipps

avatar cassydee

avatar Courtney_J

Living with cardiovascular diseases

I've started using a wearable and it is much easier to track my bp

avatar robjmckinney

avatar LizziB

Living with cardiovascular diseases

Are you satisfied with your cardiologist ?

avatar mrchipps

avatar hearty_heart

avatar iandeare

Living with kidney or urinary tract diseases

What stage of chronic kidney disease are you currently in?

avatar Glyndwr

avatar ROYuDHIN

avatar Simbas

Living with cardiovascular diseases

Heart conditions and dental care

avatar lesmal

avatar robjmckinney

avatar Courtney_J

Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

Living with kidney or urinary tract diseases

Renal failure: What has your experience with dialysis been like?

avatar Courtney_J

avatar JoyceB

avatar ROYuDHIN

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On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

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How were you diagnosed?

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