Every day is different
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I live with chronic pain and one of the hardest things is for me knowing that every day is different. I still have a smile on my face though and a sense of humour, some may say dark but a sense of humour nonetheless.
I deal with my condition by showing others that no matter how bad it is, you can still challenge yourself. I work with young people in 2 different capacities; my day job is as a teacher and my fun job is as a team leader on youth projects and programmes. As a tutor I share about my difference as I believe it gives them a greater understanding of disability and difference. This does sometimes make me a little unpopular with my boss!
In my other job I am the first one up the abseiling tower or in the pool because if I can do it, they believe they can too.
My body pays the price daily but for as long as I can, I am going to continue to push myself and make a difference to others.
@fifo67 Thank you so much for sharing your story with us. Dealing with pain everyday is difficult and tiring, I am sure there are a lot of members on here that can relate completely with what you are saying.
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Josephine, Community Manager
I cannot agree more. This is one of the hardest things about living with a chronic illness- not knowing what tomorrow will be like. I've tried to change my out look on life and be less pessimistic. But not knowing what tomorrow has in store and if I will be able to do my basic daily tasks, its challenging. I think its great you are sharing your experiences with others. I really think we need to be more vocal and try to educate others about 'invisible' illnesses. Not only about the physical challenges, but these mental ones.
Thanks for sharing.
Thank you for sharing. I have had epilepsy for 49 years now, have good days and bad ones. I also have osteoporosis, which is painful in the lower back and more. Glad to hear you are managing to live with it and staying positive. Living one day at a time makes a big difference, and having people that support you makes it even better!
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It is honestly great to be able to think like that. For me I have to tell myself to keep counting my blessings. Yes I am in pain, yes most people in my life do not understand because they do not live with this disease, they cannot even pronounce it sometimes. But I have my family, my house, I do not go hungry at the end of the day, my kids turned out to be good people, my partner is someone I can always count on. I like to think of it as a price I have had to pay to be able to live this well and be loved.
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