Ongoing discussions - Cold Agglutinin Disease
- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! For some it can be a long, arduous process, and for others it can go quickly
- Living with Usher syndrome: Share your experience!
Hello, am new here. I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye. I manage q
Ongoing discussions - Skin diseases
- CBD for eczema/atopic dermatitis?
Hi all, I was talking with a friend about our eczema and she was telling me that she was reading that CBD may have a beneficial effect on it. Apparently now there are creams and other skin products co
- Eczema - How to cope with scratching?
Hi, I’ve had eczema all my life but is comes and goes. As I’ve got older it’s come back and is really quite painful. The weather plays some part in it but my scratching is a real issue. I wak
- How do you treat your atopic dermatitis or eczema? What has worked for you?
Good morning everyone, How are you today? How do you treat your atopic dermatitis and eczema? Is it effective? Do you take or use a long-term treatment, or do you tend to just treat flares?@LisaB