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Patients Epilepsy

15 answers

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Topic of the discussion

Carenity Member • Community manager
Posted on
Good advisor

Patients with epilepsy can benefit from Personal Independence Payment which is supposed to help people cover additional costs caused by their chronic illness. To receive the PIP you must go through a special assessment.

Have you already applied for PIP and gond through the assessment successfully? How much time did it take you and did you find the process of application easy?

If you didn't get the PIP, what was the motive for the negative answer? Did you then apply for reconsideration?

Are there any other disability/ill-health benefits you've applied for?

What is your opinion of the disability benefit system in the UK? What do you think should be improved?

Don't hesitate to join in the discussion and share your views and your experiences.

Thank you in advance for your participation!

Beginning of the discussion - 12/23/17

PIP and epilepsy
Carenity Member
Posted on

My daughter suffers from Eplisey and she recently had a assessment and was given 0 points but the assessment 7 months before gave her full points so in seven months she has been cured , the assessor told lies on the report things that were never spoken about so my view of pip is it’s a massive con to deny disabled people the right to a normal life my daughter is 18

PIP and epilepsy
Carenity Member
Posted on

I agree. It is how you fill in the form that matters. You need to get help to fill it in. It will be worth putting in an appeal. 

My daughter is 42 and even though she does not live with me she needs my help with lots of things. 

PIP and epilepsy
Carenity Member
Posted on

We won her court tribunal last year then another assessment it’s a joke it’s made it hard for her to have a normal life she can’t use public transport because of her absents which will never be Controled 

PIP and epilepsy
Carenity Member
Posted on

I have just re-located to the country and told I have to wait for 2 years before I can claim for PIP... Hoping when my 2 years is up, I'll be able to comment further. 

PIP and epilepsy
Carenity Member
Posted on

I live in sheltered housing and the scheme manageress fills out all my forms as i just dont understand them

PIP and epilepsy
Carenity Member
Posted on

I have grand Mal epilepsy and have been up and down for years with it I also suffer from endarmetrosis and have applied for pip about 2 years ago but was refused? I can't work because of it. The forms are like books very complicated and difficult to get them right as I think that's the problem if you don't know what way to put things or are not good at writing or just filling these forms in then basically I think they just refuse people who are in terribly awful situations through illnesses and disabilities , citzecit advice bureau are very good at helping you fill forms in 

PIP and epilepsy
Carenity Member
Posted on

I have tried to get pip a couple of times but I have always been refused. They have said that my epilepsy is either well controlled or that I don't have it I'm making it up even though I've had epilepsy since I was a child.

PIP and epilepsy
Carenity Member
Posted on

I have grand mal epilepsy but, because I didn't have a fit in the office this man didn't believe me, he was just annoyed because I hadnt been able to keep my first PIP appointment because I had a small fit that day he obviously thought i am mot as bad as a really am because I hadn't gone to hospital preferring instead to stay at home in bed. This man who obviously wasn't a doctor thought I was OK and was just messing.

Recently I have had two bad falls while walking in the street ending in hospitals for a week both times - one resulting in countless stitches in my head he saw the scar and thought this was normal.

The only reason I got a low grade PIP is because he demanded I bend over and touch my toes eventhough I informed him I have vertigo which together with a bad back meant that when i tried to, I fell flat on my face!!

Epilepsy is a curse and changing tablets  when the neurologists decide I have to is annoying. I have been allergic to some of those. Not being allowed to drive because of my epilepsy is frustrating, feeling too ill to cook for myself after a fit is a real thing but if you don't look anorexic they dont believe you. 

PIP and epilepsy
Carenity Member
Posted on

@Margarita_k  am having problems getting pip please do u have any advice at all?

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