Topic of the discussion
Posted on 08/11/2017 11:21
As you may already know, the goal of Carenity is to help you exchange experiences and opinions, to help each other manage your condition in a better way.
So in this discussion I invite you to share the treatment for eplilepsy that you have to take every day, to be able to compare your experiences with others and to learn more about treatments available.
Don't hesitate to give your opinion if it can help others!
Beginning of the discussion - 16/11/2017What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040
Posted on 16/11/2017 16:26
Hi I am taking epilim 500! no side effects for now. What can they be?
Posted on 16/11/2017 21:10
I am on the same and am interested ..... also if there is bad interaction with other meds.
Posted on 17/11/2017 11:54
Hey epilim was the first medication I was given and one side effect I experienced was weight gain. Very quickly. Hope your well.
Posted on 30/11/2017 22:21
Hi, over the years I have been on phenabarbitone, epanutin, lamictal to control my epilepsy.
After 40 years, I have been found to have hydrocephalus and I have now had a shunt fitted.
Hopefully all will now be good, but I am staying on Lamictal so that I can continue to drive.
Posted on 09/01/2018 15:17
I take 200mg lamotrigine each day, luckily with no side effects. I was on Keppra(levetriceratam) prior to this which gave me lots of negative side effects in terms of my mental health.
Posted on 01/02/2018 14:03
I take Carbamazepine (3 x 200mg. daily) and Phenytoin (2 x 100mg. daily). With all medication, we have side effects, tiredness, loss of memory and more.
Both medications control my seizures but its taken at least 30 years on the same medication to do so!
Posted on 23/03/2021 17:45
How are you doing today? Have you seen this older discussion?
What treatments have you tried for your epilepsy? What has worked for you? Have you had to switch medications or treatments over the years? Have you had any side effects?
@Beth85 @Michelle4280 @Chantelle123 @Paulayog @Stefers100 @J9lorna @Ryley21 @Adminops155 @Cindylou @Silverwedding11 @Emma723 @Clare3kids @RachelHumph @peteracre @Jonboi67 @wendyathalifax @simmy786 @Epilepsy241982
Feel free to share your experiences and advice here!
Posted on 24/03/2021 20:29
Hi, I have been taking Lamotrigine 25mg tablets times three, twice a day for a long time, and it seems to work well.
That is 150 every day.
Posted on 28/03/2021 17:13
Since my last post, I've changed medications and been on the following:-
Tegretol (Carbamazepine), Vimpat, Lamictal and now Topiramate, which have all been tried separately. I've remained on Phenytoin right through. I'm currently waiting for EEG results and will probably be weaning off Topiramate due to serious side effects.
Regret, at the moment I cannot find a compatible medication.