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What treatments have you tried for epilepsy? What works for you?

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Margarita_k

08/11/2017 at 11:21

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Margarita_k

Last activity on 07/10/2020 at 11:39

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Hi everyone,

As you may already know, the goal of Carenity is to help you exchange experiences and opinions, to help each other manage your condition in a better way.

So in this discussion I invite you to share the treatment for eplilepsy that you have to take every day, to be able to compare your experiences with others and to learn more about treatments available.

Don't hesitate to give your opinion if it can help others!

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SarahH

Edited on 16/11/2017 at 16:26

SarahH

Last activity on 23/04/2021 at 18:08

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Hi I am taking epilim 500! no side effects for now. What can they be?

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2017-11-16 16:26:23

Unregistered member

16/11/2017 at 21:10

I am on the same and am interested ..... also if there is bad interaction with other meds.

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2017-11-16 21:10:14

Unregistered member

17/11/2017 at 11:54

Hey epilim was the first medication I was given and one side effect I experienced was weight gain. Very quickly. Hope your well.

Faye

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2017-11-17 11:54:40

BAZWHEAT

Edited on 30/11/2017 at 22:23

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BAZWHEAT

Last activity on 16/12/2025 at 17:26

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Hi, over the years I have been on phenabarbitone, epanutin, lamictal to control my epilepsy.

After 40 years, I have been found to have hydrocephalus and I have now had a shunt fitted.

Hopefully all will now be good, but I am staying on Lamictal so that I can continue to drive.

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bazwheat

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2017-11-30 22:21:43

Unregistered member

09/01/2018 at 15:17

I take 200mg lamotrigine each day, luckily with no side effects. I was on Keppra(levetriceratam) prior to this which gave me lots of negative side effects in terms of my mental health.

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2018-01-09 15:17:23

lesmal

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01/02/2018 at 14:03

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lesmal

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I take Carbamazepine (3 x 200mg. daily) and Phenytoin (2 x 100mg. daily). With all medication, we have side effects, tiredness, loss of memory and more.

Both medications control my seizures but its taken at least 30 years on the same medication to do so!

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Les

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2018-02-01 14:03:24

Courtney_J

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23/03/2021 at 17:45

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Courtney_J

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Hello everyone,

How are you doing today? Have you seen this older discussion? emoticon cute

What treatments have you tried for your epilepsy? What has worked for you? Have you had to switch medications or treatments over the years? Have you had any side effects?
@Beth85‍ @Michelle4280‍ @Chantelle123‍ @Paulayog‍ @Stefers100‍ @J9lorna‍ @Ryley21‍ @Adminops155‍ @Cindylou‍ @Silverwedding11‍ @Emma723‍ @Clare3kids‍ @RachelHumph‍ @peteracre‍ @Jonboi67‍ @wendyathalifax‍ @simmy786‍ @Epilepsy241982‍

Feel free to share your experiences and advice here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2021-03-23 17:45:29

BAZWHEAT

Edited on 24/03/2021 at 20:32

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BAZWHEAT

Last activity on 16/12/2025 at 17:26

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Hi, I have been taking Lamotrigine 25mg tablets times three, twice a day for a long time, and it seems to work well.

That is 150 every day.

Baz

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bazwheat

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2021-03-24 20:29:19

lesmal

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28/03/2021 at 17:13

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lesmal

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Since my last post, I've changed medications and been on the following:-

Tegretol (Carbamazepine), Vimpat, Lamictal and now Topiramate, which have all been tried separately. I've remained on Phenytoin right through. I'm currently waiting for EEG results and will probably be weaning off Topiramate due to serious side effects.

Regret, at the moment I cannot find a compatible medication.

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Les

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2021-03-28 17:13:37

Sunshine5

05/07/2021 at 14:32

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Sunshine5

Last activity on 04/11/2025 at 15:29

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I have been on multiple AEDs since birth. A few I can recall: Cabamazapine, Tegretol, Neurontin, Gabapentin, Lamotrigine, Pregabalin, Perampanal, Retigabine and lately: Clobazam(Frisium) since 2014, Epilim (Sodium Valproate) since 2007( cited as causing not only harm to pregnant women, but also "a contributory factor in male infertility ", I am one example), Briviact( Brivarecetam)since January 2018.

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syusuf

What treatments have you tried for epilepsy? What works for you? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/your-daily-treatment-2040 2021-07-05 14:32:16

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