Topic of the discussion
Posted on 23/01/2019 17:01
There are two main kinds of surgery that patients can have to help with their seizures and they are:
Resective surgery. This is where the surgeon will try to remove the part of your brain that is causing you to experience seizures. It can only be carried out when the section that is causing the seizures is very small with clear boundaries and doesn't have any impact on things like your speech, movement, sight, or hearing.
Disconnective surgery. Instead of removing part of your brain, the surgeon will cut the paths between the nerves in your brain that are involved in your seizures.
Have these every been suggested to you? Would they be a possibility for you?
Beginning of the discussion - 24/01/2019Have you had surgery for your epilepsy? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/have-you-had-surgery-for-your-epilepsy-2693
Posted on 24/01/2019 10:52
My doctor said my type of epilepsy can't be treated with surgery which is very disappointing but the thoughts of surgery on my brain does scare me...if it fully stopped my seizures, I would go for it though...
Posted on 30/01/2019 11:09
Posted on 30/01/2019 17:02
my daughter went for lots of tests to see was she eligible for surgery but unfortunately she was'nt
Posted on 30/01/2019 18:01
Thank you for explaining the 2 different kinds of surgery; for someone that hasn't been offered surgery or knows even what part of the brain is currently affected, this certainly is something to consider if I was given the opportunity.
In 45 years of having epilepsy, and from living in Zimbabwe and South Africa, we didn't have many Neurologists available together with little knowledge and information known on the subject. From moving from Africa, I am very grateful to the NHS for giving me the opportunity to have MRI/MRA testing, getting results from Neurology Clinic soon and at least knowing what part of the brain is affected. If surgery gave me the chance of limiting/stopping the seizures, I would definitely take up the offer!
Posted on 31/01/2019 18:37
We are waiting to do a 3T scan to see if my daughter is suitable for surgery . I have a feeling she won't be as her seizures start in 3 different parts of the brain . Do u know b4 the idea of surgery would have freaked now I find myself almost wishing she is suitable as life is so hard right now (& the last 5 yrs) with uncontrollable seizures ....
Posted on 02/02/2019 16:45
@lizzie1 Am holding thumbs for your daughter, and hope something will come out of the scan. I agree with your comment regarding freaking out about the idea of surgery in the past, but I also wish I'd have had the opportunity for surgery to make life easier.
Am waiting for the results of my MRI & MRA scan and visit Neurology Clinic in April.
Keep us posted!
Posted on 02/02/2019 19:40
Will do ... I hope your scans tell u what u need to hear ... can I ask u what is an Mra scan ? Thanks
Posted on 06/02/2019 13:35
I was also interested to know what an MRA scan was and asked for more information. Evidently it records more detail on one's blood vessels in the brain, which focuses on whether there's any weakened blood vessels, injured blood vessels, blood clotting or interruptions in blood supply.
Once I've seen the Neurology Clinic and got some feedback, I'll let you know the results.
Posted on 06/02/2019 16:32