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Living with fibromyalgia

Life with fibromyalgia

  •  1,174 views
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avatar jenfib

jenfib

Edited on 28/09/2016 at 16:22

avatar jenfib

jenfib

Last activity on 01/01/2025 at 14:00

Joined in 2015


3 comments posted | 3 in the Living with fibromyalgia group


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Hi I have Fibromyaliga and would like to talk to people and help if I can with any thing about fibromyaliga

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avatar elsbeth

elsbeth

21/03/2015 at 21:18

avatar elsbeth

elsbeth

Last activity on 22/06/2017 at 18:18

Joined in 2014


2 comments posted | 2 in the Living with fibromyalgia group


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Sounds like a flare but keep an eye on it. I have moved a few times and I always feel awful for a good couple of weeks after.

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It's not a fault its a feature.


Life with fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-248 2015-03-21 21:18:29

avatar Cmad66

Cmad66

21/03/2015 at 23:58

avatar Cmad66

Cmad66

Last activity on 10/10/2024 at 18:22

Joined in 2015


5 comments posted | 2 in the Living with fibromyalgia group


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hi just had a real bad week with pain in my left hip and back then the pain switched to my right hip really could cry but just smile and get on with it . I must say i am a volunteer  and lead art and craft sessions and this is the first week in four years I missed a day . Feel bad at letting people down but I knew I just could not keep going sending everyone light hugs 

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Cmad


Life with fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-248 2015-03-21 23:58:47
avatar exit

Unregistered member

22/03/2015 at 03:48

hi my name is julia ive had fibro for at least 15 years now . im on various tablets quite a cocktail in fact is anyone on a really high dose of morphine . my pain consultant says im on the  highest that is humanly possible anybthoughts please xx


Life with fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-248 2015-03-22 03:48:55
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Unregistered member

22/03/2015 at 03:50

 if anyone wants to friend me your more than welcome , be nice to get to get to know some new friends xxx


Life with fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-248 2015-03-22 03:50:53
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Unregistered member

03/06/2015 at 11:14

Hi my name is Barbara I've just joined this group my doctor told me last year I had fibromyalgia I was suffering for 5 yrs after trying all meds for pain my doctor came to this conclusion I have chronic pain that moves all around my body dead hands numbness affect me constantly I am still doing what I have always done but with great difficulty learning to slow down a bit or I know I will have a flare up which leaves me incapable of doing anything for a few days, does it get worse the longer you have it? I am from Dublin Ireland 


Life with fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-248 2015-06-03 11:14:25

avatar mbourdelais

mbourdelais

05/06/2015 at 00:12

avatar mbourdelais

mbourdelais

Last activity on 14/11/2019 at 14:01

Joined in 2015


18 comments posted | 12 in the Living with fibromyalgia group


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Hi Barbara, my name is Mo.  I have had Fibro for 27 years but at that time I don't think it had a name and doctors more or less told me I was imagining it.  This continued until finally I saw a doctor who diagnosed me with Fibro, in a strange way, I felt relieved.  Everybody is different, but for me it has got worse as I have got older.  Learning to know what your limits are will help but this did take me a long time to get used to.  If I do too much on a good day, I pay for it for a couple of days after.  I sometimes find that I'm either very hot or cold and suffer constantly with brain fog.  Unfortunately I cannot make plans to go out or have guests come, as I don't know how I'm going to be on any given day, which is a bit frustrating. For most people it's a case of them not understanding as they either, haven't heard of it, or they don't know how bad the pain can be. Please don't worry about the future, just take each day as it comes and you will be fine. It's also knowing when to give in to it and not pushing yourself otherwise the flare up can last longer.  Take care  Mo x

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Mbourdelais


Life with fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-248 2015-06-05 00:12:13
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Unregistered member

06/06/2015 at 16:41

Tnx Mo for your kind words I do worrie about my future I live with my two foster children that are with me long term my own daughter is in oz dnt want to be a hindrence when I'm older I'm 47 now . Suffer with pain all the time try to keep going but very hard hope you are feeling well today


Life with fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-248 2015-06-06 16:41:57

avatar pinkp70

pinkp70

07/06/2015 at 05:06

avatar pinkp70

pinkp70

Last activity on 17/03/2020 at 20:39

Joined in 2015


2 comments posted | 2 in the Living with fibromyalgia group


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Anyone else suffer with being unable to sleep...so exhausted but what with restless legs and other pain I'm lucky to get more than a couple of broken hours of sleep..it's making feel so ill plus it's lonely being awake night after night


Life with fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-248 2015-06-07 05:06:29
avatar exit

Unregistered member

09/06/2015 at 20:03

HI IM SHEREE JUST JOINED GROUP.I TO HAVE THIS FIBRO. IM IN CONSTANT PAIN. IT MOVES AROUND MY BODY,HAD MEDS OFF DOCTOR. BUT CANT TAKE RELAXERS. HAS MY SON 24 HOUR CARE. ALSO HAVE HYPORTHYROYED,AND FEELING DOWN THIS LAST COUPLE DAYS,HAS ANYONE ELESE HERE HAD TROUBLE WITH WATERWORKS, SOME DAYS I CANT GO AT ALL.AND TEMPRATURE THROUGH THE ROOF.ANY ALL TERNABLE MEDS OUT THERE. IM TRYING MEDITATION AT MOMMENT,ANY ADVISE PLEASE.THIS FIBRO FOG DOING.MY HEAD IN.BLESSING TO ALL. HAVE A GOOD NIGHT.XX


Life with fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-248 2015-06-09 20:03:27
avatar exit

Unregistered member

28/07/2015 at 15:31

Hi all I'm Pauline with numerous medical conditions Fibromyalgia is a tough one I'm slowly being drained who I once was looking for people in the same boat to share an support each other x


Life with fibromyalgia https://www.carenity.co.uk/forum/other-discussions/living-with-fibromyalgia/fibromyalgia-248 2015-07-28 15:31:47
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