Home
Share
Forum
Myasthenia Forum
Living with myasthenia gravis
Myasthenia: How did the diagnosis affect your mental health?

Back

Patients Myasthenia

Myasthenia: How did the diagnosis affect your mental health?

29 views
0 support
2 comments

Polina.K

Community manager

Edited on 16/05/2023 at 11:55

Good advisor

Polina.K

Community manager

Last activity on 11/08/2023 at 12:02

Joined in 2023

89 comments posted | 1 in the Myasthenia Forum

12 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hello everyone! I hope you are doing well!

I wanted to start this discussion today about Myasthenia and mental health. Many patients struggle with the diagnosis and worry about the future.

How was it for you? How do you feel now? Was it hard for you mentally to accept your diagnosis? How do you cope? Share here!

@RebeccaCopson @Zaphod001 @SAMANTHACARTER @MaggieMG @lilyofthevalley @NicoleS @Flower @Joanneedmonds @Redrose47 @Geruccio

Participate in the new survey about Myasthenia today!

Take care,

Polina from the Carenity team

All comments

SAMANTHACARTER

10/05/2023 at 16:07

SAMANTHACARTER

Last activity on 24/08/2023 at 22:29

Joined in 2022

2 comments posted | 2 in the Myasthenia Forum

Rewards

Explorer

View profileView Add a friendAdd Write

My Myasthenia Gravis has been okay The Legs are fine in most cases but they are slightly difficult always on the morning. I have no issue in the afternoon and night. Arms are always perfect, the eyes are also perfect. Sometimes the jaw makes it difficult to eat but this doesn't happen a lot and when it does soft food is fine. I have small things like water in the eyes which last a hour but again it is not an issue. All in all I get through the day and life is fine.

Steve Higgins

Myasthenia: How did the diagnosis affect your mental health? https://www.carenity.co.uk/forum/myasthenia/living-with-myasthenia-gravis/myasthenia-how-did-the-diagnosis-affect-your-m-5041 2023-05-10 16:07:37

LizziB

Community manager

30/01/2024 at 01:56

Good advisor

LizziB

Community manager

Last activity on 02/04/2024 at 00:46

Joined in 2022

280 comments posted | 2 in the Myasthenia Forum

19 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hi @SAMANTHACARTER thank you for your response. I'll tag a few more members to see if they would like to share their experiences.

@SusieDavies23 @juliemar @Huricane @Kopite301046 @Andy2702 @Gombos @KimberleyDavid @Shazcbf @Dottym @lenawest @MackemDH5 @uLYSSE007 @Maria.ellis2 @Ivanna @Susanjane @sarah71 @scotsgal57 @scotsgal42 @Alanb50 @Ellielay @kerryab1 @Trishna

See the signature

Lizzi

Members are also commenting on...

MaggieMG

Edited on 18/11/2022 at 16:13

@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.

See the best comment

annierich

21/11/2016 at 15:19

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!

See the best comment

MaggieMG

Edited on 18/11/2022 at 16:13

See the best comment

annierich

21/11/2016 at 15:19

See the best comment

Articles to discover...

27/12/2023 | Testimonial

Dr. Vickie about Myasthenia Gravis: “When you push MG, it pushes back.”

10/08/2022 | Testimonial

Myasthenia gravis: "I still want to do everything I can for myself"!

18/07/2022 | Testimonial

Myasthenia gravis: "When I understood what I was dealing with, the remission began"

15/06/2022 | Testimonial

Myasthenia gravis: "I'm not ready to give up on my life because of my illness!"

20/09/2018 | News

Removing 'zombie' cells deters Alzheimer's in mice

18/05/2022 | Testimonial

Myasthenia gravis: "There are worse things in this world, this is what keeps me going."

17/12/2021 | News

Myasthenia gravis: Symptoms, diagnosis and similarities with other conditions

24/05/2022 | News

Myasthenia gravis: how does the disease progress?