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Myasthenia: How did the diagnosis affect your mental health?
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SAMANTHACARTER
My Myasthenia Gravis has been okay The Legs are fine in most cases but they are slightly difficult always on the morning. I have no issue in the afternoon and night. Arms are always perfect, the eyes are also perfect. Sometimes the jaw makes it difficult to eat but this doesn't happen a lot and when it does soft food is fine. I have small things like water in the eyes which last a hour but again it is not an issue. All in all I get through the day and life is fine.
Steve Higgins
LizziB
Community managerGood advisor
Hi @SAMANTHACARTER thank you for your response. I'll tag a few more members to see if they would like to share their experiences.
@SusieDavies23 @juliemar @Huricane @Kopite301046 @Andy2702 @Gombos @KimberleyDavid @Shazcbf @Dottym @lenawest @MackemDH5 @uLYSSE007 @Maria.ellis2 @Ivanna @Susanjane @sarah71 @scotsgal57 @scotsgal42 @Alanb50 @Ellielay @kerryab1 @Trishna
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MaggieMG
@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.
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MaggieMG
@Courtney_J My symptoms came on rather suddenly, almost overnight. I thought at first I was having a stroke because you hear about the face drooping when that happens. Then I thought it was stress or fatigue but then when it didn't go away I knew it was something else. I went to my GP who told me to go to an eye doctor. Then there was some back and forth with the GP who finally ordered tests for me. It was awful waiting for the test results.
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Polina.K
Community managerGood advisor
Hello everyone! I hope you are doing well!
I wanted to start this discussion today about Myasthenia and mental health. Many patients struggle with the diagnosis and worry about the future.
How was it for you? How do you feel now? Was it hard for you mentally to accept your diagnosis? How do you cope? Share here!
@RebeccaCopson @Zaphod001 @SAMANTHACARTER @MaggieMG @lilyofthevalley @NicoleS @Flower @Joanneedmonds @Redrose47 @Geruccio
Participate in the new survey about Myasthenia today!
Take care,
Polina from the Carenity team