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Neurofibromatosis Type 1 with Cutaneous Neurofibromas Forum

  •  9 members
  •  41 discussions

What are the symptoms of neurofibromatosis type 1 with skin tumours? How to get the right diagnosis? What are the treatments that fight the disease? Join our forum and our discussions!

Medical fact sheet

Neurofibromatosis Type 1 with Cutaneous Neurofibromas

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Living with a rare disease
Living with skin conditions

Living with skin conditions

Eczema Flare-Ups: What everyday trigger took you the longest to figure out?

avatar Prubing89

Living with skin conditions

ITP and dental appointments: Do you take extra precautions before treatment?

avatar Thubrajeng37

avatar Prubing89

Living with skin conditions

What activities feel safe when platelets are low?

avatar Razar.M

avatar Prubing89

Living with skin conditions

Is fatigue harder to explain than a low platelet count?

avatar Thubrajeng37

Living with skin conditions

Skincare for Children: Are Young Kids at Risk of Skin Allergies?

avatar Razar.M

Living with skin conditions

My Lichen Sclerosus is gone

avatar 1Deygoothoan

Living with skin conditions

How do you deal with how others see you and your skin condition?

avatar Roubayt1

avatar Troubon409

avatar Saroonit52

Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar 1Deygoothoan

Living with a rare disease

How were you diagnosed with a rare disease?

avatar 1Deygoothoan

avatar Bedreemaykil775

Living with skin conditions

Atopic dermatitis flare-ups: How do you manage them?

avatar 6439Veytreeceypren

Living with skin conditions

Does stress have effects on your skin?

avatar Polina.K

Living with skin conditions

CBD for eczema/atopic dermatitis?

avatar Prowayr98

avatar 0Trehaysh

avatar Proafleyl96

Living with skin conditions

My skin is worse in the winter-is yours?

avatar Lithor1

avatar Saroonit52

avatar Rahul.R

Living with skin conditions

Keeping your mental health in check

avatar Rahul.R

avatar Saroonit52

Living with skin conditions

Recommendations for urticaria treatment?

avatar Berthe.N

Living with skin conditions

Eczema - How to cope with scratching?

avatar Cliweadreet990

avatar Saroonit52

avatar 6767Sapreygay

Living with skin conditions

How do you treat your atopic dermatitis or eczema? What has worked for you?

avatar 001Bearulout

avatar Neelooblesh04

avatar Faidrogleecal36

Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar Nodrayreyfock384

avatar Courtney_J

Living with skin conditions

Burning feeling on my neck and face, especially in winter - Have you been through this?

avatar 4Croyoo

avatar Courtney_J

Living with skin conditions

Are there any alternatives to steroid creams to treat eczema flare-ups?

avatar 841Grayfour

avatar Courtney_J

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