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Neurofibromatosis Type 1 with Cutaneous Neurofibromas Forum

  •  14 members
  •  31 discussions

What are the symptoms of neurofibromatosis type 1 with skin tumours? How to get the right diagnosis? What are the treatments that fight the disease? Join our forum and our discussions!

Medical fact sheet

Neurofibromatosis Type 1 with Cutaneous Neurofibromas

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Living with a rare disease
Living with skin conditions

 Living with skin conditions

CBD for eczema/atopic dermatitis?

avatar Heridana

avatar JimboWombo

avatar lawissa

 Living with skin conditions

Does stress have effects on your skin?

avatar Polina.K

 Living with skin conditions

My skin is worse in the winter-is yours?

avatar Glencairn

avatar Becķy-3

avatar Rahul.R

 Living with skin conditions

Keeping your mental health in check

avatar Rahul.R

avatar Becķy-3

 Living with skin conditions

How do you deal with how others see you and your skin condition?

avatar Becķy-3

avatar Trvlr1

avatar BoneAppleTea

 Living with skin conditions

Recommendations for urticaria treatment?

avatar Berthe.N

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar unhappy

 Living with skin conditions

Eczema - How to cope with scratching?

avatar george43

avatar Becķy-3

avatar Karlsmum

 Living with skin conditions

How do you treat your atopic dermatitis or eczema? What has worked for you?

avatar CerysNorth

avatar Poppyh91

avatar Courtlouiselee

 Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

 Living with skin conditions

Burning feeling on my neck and face, especially in winter - Have you been through this?

avatar Tontnella

avatar Courtney_J

 Living with skin conditions

Are there any alternatives to steroid creams to treat eczema flare-ups?

avatar Mishb94

avatar DougieMcCullough

avatar Courtney_J

 Living with skin conditions

Red, sore inflamed rashes on abdomen - Has anyone else had this?

avatar AngelaH

avatar ItCHY!!!***

 Living with skin conditions

Have you tried Methotrexate for atopic dermatitis?

avatar DeanH1988

avatar jaybelevee

avatar Courtney_J

 Living with skin conditions

My seborrheic eczema is affecting my mental health

avatar Johanna

avatar Thedoc83

avatar Courtney_J

 Living with skin conditions

Topical steroid cream for eyelids and eye health: Does it work?

avatar Elizabeth12

avatar niki10

avatar Courtney_J

 Living with skin conditions

Flare ups making it difficult to move and impacting my mental health

avatar Johanna

avatar Courtney_J

 Living with skin conditions

Welcome to the skin conditions group! Come say "Hello"!

avatar Rainbow195757

avatar DeanH1988

avatar Carl_B

 Living with skin conditions

Eczema flare-up on forehead, eyes and hands: Any advice?

avatar amygray

avatar Cazz2008

avatar Dancingqueen84

 Living with skin conditions

Baby and toddler eczema: Any advice?

avatar DeanH1988

avatar Courtney_J

avatar Jojoseph

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