Patients Parkinson's disease
Topic of the discussion
Posted on 17/11/2016 10:55
How difficult were the first months after you were diagnosed? What were your first reactions and symptoms and how did you learn to cope with them?
Beginning of the discussion - 08/12/2016First months https://www.carenity.co.uk/forum/parkinson/living-with-parkinson/first-months-1450
Posted on 08/12/2016 17:52
Don't hesitate to share your experience with other members!
@Zibi72, @penelope14, @Fabienne, @nick.williamx, @smith1629 would you be interested in telling us about your first months after the diagnosis ?
Posted on 09/12/2016 08:21
My first monhs after diagnosis:-
Dad had PD. He was diagnosed when he was in his mid 50's. He managed to continue to work until he retired at 65. He was a solid man.
I knew that I had a problem at least 2 years before diagnosis. The GP wouldn't believe me. However, after continuously raising the issue with the GP, they referred me to the hospital for a DAT scan.
I knew what the result would be.
When I received the letter confirming PD, it was no shock. It was just a case of starting meds and working out what works for me.
I am lucky because my family know about PD having researched it when Dad was diagnosed.
So, to summarise:-
No big shock
No family issues
Life continues as normal
Posted on 15/12/2016 10:20
I was not surprised as dad also had parky after he retired.
aftrr trying tablets which upset stomach really badly I took no meds for nearly a year. Family were in denial. Am now on patches.
parky nurse very good , works with me.