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Patients Parkinson's disease

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Topic of the discussion


• Community manager
Posted on
Good advisor

How difficult were the first months after you were diagnosed? What were your first reactions and symptoms and how did you learn to cope with them?

Beginning of the discussion - 08/12/2016

First months

• Community manager
Posted on
Good advisor

Don't hesitate to share your experience with other members!

@Zibi72, @penelope14, @Fabienne, @nick.williamx, @smith1629 would you be interested in telling us about your first months after the diagnosis ?

First months


Posted on

My first monhs after diagnosis:-

Dad had PD.  He was diagnosed when he was in his mid 50's.  He managed to continue to work until he retired at 65.  He was a solid man.

I knew that I had a problem at least 2 years before diagnosis.  The GP wouldn't believe me.  However, after continuously raising the issue with the GP, they referred me to the hospital for a DAT scan.

I knew what the result would be.

When I received the letter confirming PD, it was no shock.  It was just a case of starting meds and working out what works for me.

I am lucky because my family know about PD having researched it when Dad was diagnosed.

So, to summarise:-

No big shock

No family issues

Life continues as normal

First months


Posted on

 I was not surprised as dad also had parky after he retired.

aftrr trying tablets which upset stomach really badly I took no meds for nearly a year. Family were in denial. Am now on patches.

parky nurse very good , works with me. 

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