Psoriatic Arthritis: 5 Things People Often Don’t Understand About Living With PsA

Hi everyone 👋

Living with psoriatic arthritis can be difficult to explain to someone who has never experienced it. From the outside, people may only think about painful joints, while the reality can be much broader and different from one person to another.

Here are 5 things people living with PsA may relate to:

1. It’s not always just about joint pain – stiffness, swelling, fatigue, skin or nail changes can all affect daily life.
2. Every day can feel different – something that feels manageable one day may be much harder on another.
3. Fatigue can be difficult to explain – feeling exhausted isn’t always the same as simply needing more sleep.
4. Not every symptom is visible – you may look well while still dealing with symptoms that others cannot see.
5. There is no single PsA experience – what affects one person most may be completely different for someone else.

💬 Which of these do you relate to most?

And if you could add a sixth thing that you wish other people understood about living with psoriatic arthritis, what would it be?

I’d really like to hear from our community members.

@LarnyG @ClaraJane2022 @FrustratedSufferer @Ashley @SarahWoodcock @Jan160261 @Ifickmywife @Debbie76 @Sarahbar @MellyFlay @Sam4095 @Sonia1983 @Tulip017 @Debz70 @ziggy7678 @DawnieB @Loneshania @Arthur1234 @Lisam76 @AustinS @Gilles2016 @Sally-ann @Trishb @Hilton @Shirlsh @Karen1965 @Nuls22 @Nuttree @Torrie @Jenfa69 @Jojostevo @FionaV @HazelWilliams @Parranquet @Alim244 @Jools63 @Chrisk78 @Pembe66 @McCaffs @Believer @M1ami007 @Jennii @Flossfrack @Kaycee @TheMrsH @Munchcorn @Diamondartcrazy @Jackie1971 @Pauloq @Thurste10 @Mariawallace @Sarah-Anne @Pebs1973 @KerryH73 @Judi2708 @TerriSH @Debbie1966 @Dukesave @J4kki7 @Dwoolven @Michelle75 @Tinablick49 @Mabusela @Fifi00 @sivemanona @Paulfan @Thorzeks @Maureen60 @Carolmary @colexelzie @Anehtah

If you feel comfortable sharing, tell us about your experience - it may help someone else feel understood or realise they’re not alone. 💙

Take care,

Razar from the Carenity team💖