Ongoing discussions - Cold Agglutinin Disease
- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! For some it can be a long, arduous process, and for others it can go quickly
- Living with Usher syndrome: Share your experience!
Hello, am new here. I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye. I manage q
Ongoing discussions - Digestive tract
- Lower abdomen pain
I am currently getting bad bowel cramps and painful bloating. When I sneeze I get a sharp pain in my lower abdomen. Has anyone else had this?
- What is the most frustrating or difficult aspect of living with a digestive disorder?
Hello everyone, How are you today? I thought I would open this discussion to talk more about life with a digestive disorder! In your opinion, what is the most difficult or frustrating part of livin
- Crohn’s disease, ulcerative colitis tied to anxiety and depression
Crohn’s disease and ulcerative colitis – both gastrointestinal diseases – have been tied to anxiety and depression. In a previous study researchers found that not only is Crohn’s disease tied