Back

Bullous congenital ichthyosiform erythroderma Forum

  •  2 members
  •  34 discussions

Join Carenity's forum to talk with other patients and cartakers living with this skin condition.

Medical fact sheet

Bullous congenital ichthyosiform erythroderma

All
Living with a rare disease
Living with skin conditions

Living with skin conditions

My Lichen Sclerosus is gone

avatar Somya.P

Living with skin conditions

How do you deal with how others see you and your skin condition?

avatar Spanks57

avatar LifeDelineator

avatar Becķy-3

Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar Somya.P

Living with a rare disease

How were you diagnosed with a rare disease?

avatar Somya.P

avatar unhappy

Living with skin conditions

Atopic dermatitis flare-ups: How do you manage them?

avatar Skala37

Living with skin conditions

Does stress have effects on your skin?

avatar Polina.K

Living with skin conditions

CBD for eczema/atopic dermatitis?

avatar Heridana

avatar JimboWombo

avatar lawissa

Living with skin conditions

My skin is worse in the winter-is yours?

avatar Glencairn

avatar Becķy-3

avatar Rahul.R

Living with skin conditions

Keeping your mental health in check

avatar Rahul.R

avatar Becķy-3

Living with skin conditions

Recommendations for urticaria treatment?

avatar Berthe.N

Living with skin conditions

Eczema - How to cope with scratching?

avatar george43

avatar Becķy-3

avatar Karlsmum

Living with skin conditions

How do you treat your atopic dermatitis or eczema? What has worked for you?

avatar CerysNorth

avatar Poppyh91

avatar Renyta

Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

Living with skin conditions

Burning feeling on my neck and face, especially in winter - Have you been through this?

avatar Tontnella

avatar Courtney_J

Living with skin conditions

Are there any alternatives to steroid creams to treat eczema flare-ups?

avatar DougieMcCullough

avatar Courtney_J

Living with skin conditions

Red, sore inflamed rashes on abdomen - Has anyone else had this?

avatar AngelaH

Living with skin conditions

Have you tried Methotrexate for atopic dermatitis?

avatar DeanH1988

avatar jaybelevee

avatar Courtney_J

Living with skin conditions

My seborrheic eczema is affecting my mental health

avatar Johanna

avatar Thedoc83

avatar Courtney_J

Living with skin conditions

Topical steroid cream for eyelids and eye health: Does it work?

avatar Elizabeth12

avatar niki10

avatar Courtney_J

Living with skin conditions

Flare ups making it difficult to move and impacting my mental health

avatar Johanna

avatar Courtney_J

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

Survey

How were you diagnosed?

Articles to discover...

Why do some people bruise so easily?

18/07/2026 | News

Why do some people bruise so easily?

When treatments cause sweating: a little-known side effect

11/07/2026 | News

When treatments cause sweating: a little-known side effect

Why are nanoparticles used in some medicines?

04/07/2026 | News

Why are nanoparticles used in some medicines?

Those daily energy slumps: What your biological clock is trying to tell you

27/06/2026 | News

Those daily energy slumps: What your biological clock is trying to tell you

The immune system: Your body's first line of defence and the science behind it

20/06/2026 | News

The immune system: Your body's first line of defence and the science behind it

Why spring changes your mood, energy, and body more than you think

23/05/2026 | News

Why spring changes your mood, energy, and body more than you think

Between promise and reality: can omega-7 improve metabolic health?

18/04/2026 | Nutrition

Between promise and reality: can omega-7 improve metabolic health?

Living a healthy life with a chronic illness: is that really possible?

07/04/2026 | News

Living a healthy life with a chronic illness: is that really possible?