Ehlers-Danlos syndrome
Forum

Current topics:

• - How do you treat your atopic dermatitis or eczema? What has worked for you?
  Good morning everyone,  How are you today? How do you treat your atopic dermatitis and eczema? Is it effective? Do you take or use a long-term treatment, or do you tend to just treat flares?@LisaB
• - Eczema - How to cope with scratching?
  Hi,  I’ve had eczema all my life but is comes and goes. As I’ve got older it’s come back and is really quite painful. The weather plays some part in it but my scratching is a real issue. I wak
• - Burning feeling on my neck and face, especially in winter - Have you been through this?
  My neck has been red for about 8 months now and is burning.my facial skin is burning under my skin it's worse when it's cold or windy 

Current topics:

• - Life after a joint replacement: Share your experiences and advice!
  After number of years with osteoarthritis . I have had no choice but to have a hip replacement . Any one who had any helpful tips, recommendations or just a friendly ear for people to chat to all is w
• - Total hip replacement: Can you share any advice?
  Suffering badly with hip pain due for a total hip replacement soon with covid it has been cancelled several times over the last two years has any body got advice for me also pain relief your help and
• - Can't Apply for PIP (DLA) Must Be Attendance Allowance Because I'm too old. Anyone Applied for Attendance Allowance in UK
  HI,  Just wondered if anyone has applied for attendance allowance; in place of PIP (DLA) because of age; over 65. ?? I'm in the process of filling in the form. Help and advise appreciated.I'm real

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak

Current topics:

• - Are you going to continue to wear a face mask after you've had both vaccine jabs?
  I've been thinking about this since I had my first jab 3 weeks ago. I see many advantages in continuing to wear a face mask ~LESS pollution, less bugs leading to chest and other infections, lowering
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay positi
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today?  The pharmaceutical groups Pfizer (USA) and BioNTech (Germany) announced on Monday 9 November that their vaccine candidate is 90% "effective" in preventing Covid-