Have you ever experienced memory problems because of your epilepsy?

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Patients Epilepsy

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• Community manager
Posted on

Hello everyone, 

How are you today? emoticon cute

I just wanted to drop in to share our latest article, in honour of International Epilepsy Day, which describes the affect that epilepsy can have on memory: How does epilepsy affect memory?

And what about you? Have you ever experienced memory issues following your seizures? How do you cope with it?
@WillowsAcolyte@Petcarer@Dede1996@Sammymay7642@EPandMe@Babushka@crocket@Cromy888@Mrs.Parker@Princess-Jaz@llanarth@Emmalouise77@Ananya@RavenRoses@RichardJimPompaJr.@Sharmeena@Beth85‍ 

Feel free to share any experiences or advice here, we're all here to support one another!

Take care,
Courtney

Beginning of the discussion - 17/03/2021

Have you ever experienced memory problems because of your epilepsy?


Posted on

@Courtney_J Oh yes, I'm very familiar with memory issues. Usually when I have a seizure I don't remember what I was doing before and it takes me a few minutes after regaining consciousness to realise what happened. The medicines I take also give me problems with short-term memory, it takes a bit for me to learn new things and it gave me some trouble at school on top of my seizures.

Have you ever experienced memory problems because of your epilepsy?


Posted on

I have short term memory issues caused by left temporal lobe epilepsy. During a seizure,  a can feel a strange sensation and this develops into secondary generalisation, affecting my entire brain for a minute.  My seizures are better controlled after surgery and medication,  but my ongoing difficulties to find work for these reasons has increased my anxiety and I am now chronically anxious.

I sometimes wish my life would end and go to heaven and with restrictions on social interactions due to CO-VID, I can no longer go anywhere other than the park. 

Have you ever experienced memory problems because of your epilepsy?

• Ambassador
Posted on

Memory loss is a major issue for me after 47 years with epilepsy.

I've been on so many medications its unbelievable, just to try and find control through dosages and the right combination.

I've discovered that my long term memory is still good, but regret short term memory gets worse as I get older and when they keep changing my meds.

In the past, I had tonic clonic seizures and could not remember much after a seizure. Now I struggle with focal seizures, and am always conscious when they happen in clusters. I remember the episodes occurring still a few days afterwards, but have to write the date and time they happen to keep a proper record of how often.

I always carry a diary, notepad and pen in my handbag. This helps me write down tasks I have to complete today or tomorrow, as well as anything else I need to remember such as groceries to get and more!

I'm on a new medication now which I've only just started, so hate to think of how this will make my memory worse! 

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