Would a wearable alert make you feel safer or more anxious?

Hi everyone 💜

For many people living with epilepsy, one of the hardest parts can be not knowing exactly when the next seizure might happen.

That uncertainty can affect everyday decisions.

Going out alone, sleeping by yourself, travelling, exercising or simply being somewhere without family nearby may sometimes bring extra worry.

This is one reason seizure detection watches and wearable epilepsy devices are receiving so much attention.

Researchers are developing smartwatches and wrist-worn sensors that use movement, heart signals and artificial intelligence to identify certain seizures and potentially send an alert to a caregiver.

Recent studies have shown promising results for detecting tonic-clonic seizures, although these devices are not perfect and may not detect every seizure type. False alarms can also happen.

For some people, having an automatic seizure alert could offer reassurance.

For others, wearing a device that is constantly monitoring for seizures might make epilepsy feel even more present in everyday life.

💬 We’d love to hear from you:

• Do you currently use a seizure detection watch, app or wearable device?
• Would an automatic seizure alert help you feel safer when you are alone?
• Would false alarms make you more anxious or eventually stop you trusting the device?
• What would matter most to you in a seizure wearable: accuracy, comfort, battery life, privacy or the ability to alert someone quickly?

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Technology cannot remove all the uncertainty of epilepsy, but it may change how people manage that uncertainty.

Would you personally feel more independent wearing a seizure detection device, or would you prefer not to be monitored all the time?

With care,

Razar from the Carenity team💖