Topic of the discussion
Posted on 02/07/2019 16:31
Seizures can vary in frequency among those with epilepsy, from one a year to several a day.
How many seizures do you have a day? a month? a year?
Beginning of the discussion - 02/07/2019How often do you have a seizure on average? https://www.carenity.co.uk/forum/epilepsy/symptoms-and-complications-of-epilepsy/how-often-do-you-have-a-seizure-on-average-2883
Posted on 02/07/2019 16:50
How about you? When was your last seizure? What has been your longest lapse of time between two seizures? Please share :)
@Emmalouise77 @Kimhumphrey @RavenRoses @Ananya @Sharmeena @RichardJimPompaJr. @Kellyscheepers @47coisraille @Chantelle123 @Josieferguson @Littlemissk3 @KennyMartin @Choccers @Mrswillingham @Faehelen @Annie6 @Merbear33 @Donna41 @Meme6612 @Epilepsymum @J9lorna @Sarahbennet6789 @Paulayog @Caring @Stefers100 @Rhianllew1985 @Adminops155 @gillian.preater @Cindylou
Posted on 09/07/2019 13:00
Thank you for bringing up this topic... It should be interesting to see others' replies.
I have had epilepsy for 45 years now which initially started as 'grand mal' seizures. The wording for this has now changed to 'tonic clonic' seizures. As a teenager and during initial diagnosis, these were frequent, approximately 3 per week, together with frequent partial seizures. Due to stress of exams and hormonal changes, these got more often. One is given medication, but this may not always work and takes time to get into one's system. Finding the correct medication took years, and of course finding the correct dosage was even harder.
Once stable and after a full hysterectomy, the frequency of my seizures stabilised to approximately 2 per month. As I got older and went into Menopause, I had approximately one massive seizure a month. The simple partial seizures never stopped. Heat, hormonal changes and stress were the three main triggers for me.
I re-located to a cooler climate on the other side of the world, and since arrival here (almost 2 years), have had only one tonic clonic seizure. I put this down to cooler weather, less stress and a more relaxed lifestyle. However, the simple partials still continue.
After recent testing new medication has now been prescribed after 30 years on one medication, so trying to get used to the change has been harder even still. I am currently on a 12 week weaning off one and increasing another medication process. Since starting the medication and whilst increasing the dosage, I've had more partial seizures in 6 weeks, but I put this down to the change. I will continue to persevere for the 12 weeks and once consulting with the Neurologist, will make a decision from there.
In all 45 years with epilepsy, the last 2 years has been the longest I've gone without a tonic clonic seizure! These appear to be well controlled now; controlling the minor ones is the difficulty.
Posted on 06/08/2019 21:48
I’m not sure , I seem to have them at night , my dog sleeps with me , he wakes me so I’m assuming that’s when I’m having one I feel exhausted .