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What is your lupus story? Let's share!

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Margarita_k

Edited on 16/11/2016 at 19:35

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Margarita_k

Last activity on 07/10/2020 at 11:39

Joined in 2016

1,195 comments posted | 23 in the Lupus Forum

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Hello,

In this discussion you can share your stories about how you were diagnosed.

When did it happen? What were your first reactions?

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Somya.P

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05/05/2026 at 14:46

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Somya.P

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Last activity on 26/06/2026 at 12:43

Joined in 2023

1,101 comments posted | 13 in the Lupus Forum

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Hello everyone,

each lupus journey is different, and sharing your story can help others feel less alone and better understood.

How did your lupus story begin?
What symptoms first led to your diagnosis?
And how has your journey been since then?

Please feel free to share your experience with the other members. 💛

Take care,

Somya from the Carenity team 🌼

@goldengirl @Annewells @tinkerjack1912 @Roni12 @Lupus-lassie @Sunshine56 @Pinky58 @eils67 @Jules52 @LaLarga @Rarebits @LadyMuriel @AcmeLey @Becca.R @Bex2407 @Barbie82 @Angelaq @mizmoll @lesjames @Suew13 @rachwjohnston @Kittysones @Joanna123 @DeenieBop @Alexamary @Alexislby @Amanda9975 @Kimmi1 @Amiira2017 @Zadeyboo @Esperanzalarge @Jankew @Victoria1968 @Emmachen81 @FavourofGod @Marielinton @Maddymay06 @amr_zanaty @KatieE @Nomibee @Rainbow40 @Eleanorc @Ruthgoddard @Divinidad @Jackleo1 @Susannah16 @MrsB007 @Linzijc @LouiseElcross @Lilread92 @Jazzib58 @Kelly246 @amanda397 @TracyyAS @Heatheruk

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Somya from the Carenity team 🌼

What is your lupus story? Let's share! https://www.carenity.co.uk/forum/lupus/living-with-lupus/your-diagnosis-1386 2026-05-05 14:46:01

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Unregistered member

21/11/2016 at 15:19

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!

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Unregistered member

21/11/2016 at 15:19

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What is your lupus story? Let's share!

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