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Myelofibrosis Forum

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  •  234 discussions

Medical fact sheet

Myelofibrosis

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Living with cancer
Treatments for cancer
Living with a rare disease
Living with diseases affecting muscles, joints and-or skeleton

Treatments for cancer

Chemotherapy: Experiences and advice

avatar YorkshireJayne

avatar Courtney_J

avatar MrsChelle

Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

Living with cancer

Telling patients to 'fight' cancer puts them under pressure

avatar Toniblade

avatar Sandy69

avatar Courtney_J

Living with cancer

What helps you to stay positive?

avatar laraine160153

avatar robjmckinney

avatar Tigger.co.uk

Living with diseases affecting muscles, joints and-or skeleton

Knee replacement

avatar Moonstone1

avatar Jennyh44

avatar aglowlady

Living with diseases affecting muscles, joints and-or skeleton

Total hip replacement: Can you share any advice?

avatar VICKICOFFEY

avatar dantheman

avatar Courtney_J

Living with cancer

How do you cope with cancer-related fatigue?

avatar robjmckinney

avatar Courtney_J

Living with diseases affecting muscles, joints and-or skeleton

Can't Apply for PIP (DLA) Must Be Attendance Allowance Because I'm too old. Anyone Applied for Attendance Allowance in UK

avatar Pagma1

avatar Dodger99

avatar MariaAQuinn

Living with diseases affecting muscles, joints and-or skeleton

Having trouble getting my knee operation scheduled because of COVID-19

avatar Nanaclaire

avatar Tony65

avatar Courtney_J

Living with cancer

Cancer "survivor": How do you feel about this term?

avatar keiraH

avatar mrjerry55

avatar Tigger.co.uk

Living with cancer

How to support a friend or loved one with cancer?

avatar Courtney_J

avatar minnymum78

Living with diseases affecting muscles, joints and-or skeleton

Leg swelling

avatar Smudger

Living with cancer

Are you satisfied with your relationship with your doctors and medical team?

avatar Tigger.co.uk

avatar janeabuckhursthill

avatar mrchipps

Living with cancer

Surviving multiple cancers

avatar Troyhayter

avatar Courtney_J

Living with cancer

Has cancer had an impact on your relationships?

avatar Tigger.co.uk

avatar samjayne

avatar mrchipps

Treatments for cancer

Any experiences with Prolia (Denosumab)?

avatar Courtney_J

Living with cancer

Could the pain in my back be a sign of cancer?

avatar Courtney_J

Living with cancer

Learning to cope with cancer

avatar mrchipps

avatar Courtney_J

Living with diseases affecting muscles, joints and-or skeleton

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

avatar Lisanna

avatar Beyondwords_uk

avatar JosephineO

Living with diseases affecting muscles, joints and-or skeleton

Ehlers-Danlos Syndrome: What's your story?

avatar Lisanna

Give your opinion

Survey

Love, Dating… and Chronic Illness: What’s it really like for you?

Survey

What is it like to be a woman in the healthcare system?

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What do you think about the Carenity Forum and community?

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Help shape the future of Carenity!

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Become a Carenity Ambassador – Help our community thrive!

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How were you diagnosed?

Articles to discover...

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

06/02/2019 | Advice

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

Fifteen percent of osteoporosis patients who take 'drug holidays' suffer bone fractures

07/05/2018 | Advice

Fifteen percent of osteoporosis patients who take 'drug holidays' suffer bone fractures

Dopamine: What role does it play in motivation, mood, and daily life?

10/01/2026 | News

Dopamine: What role does it play in motivation, mood, and daily life?

Skin burning after corticosteroids: how to recognise and relieve this little-known syndrome?

09/01/2026 | Advice

Skin burning after corticosteroids: how to recognise and relieve this little-known syndrome?

Sleeping pills: A quick fix or a long-term risk for your sleep?

02/01/2026 | Advice

Sleeping pills: A quick fix or a long-term risk for your sleep?

Thank you for being here. Together, we move forward into 2026.

01/01/2026 | News

Thank you for being here. Together, we move forward into 2026.

Sleeping well naturally: What you can do to increase your melatonin levels

27/12/2025 | Advice

Sleeping well naturally: What you can do to increase your melatonin levels

Acceptance and commitment therapy (ACT): Can it be a kinder way to cope with anxiety, depression and chronic pain?

19/12/2025 | News

Acceptance and commitment therapy (ACT): Can it be a kinder way to cope with anxiety, depression and chronic pain?