Logo Carenity
Logo Carenity
Join now! Log in
flag en
flag fr flag es flag de flag it flag us
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Conditions

Fact sheets
See all - Disease index from A to Z

About

Who are we?
Why share your data?
The Carenity team
The ambassadors
Partner associations
Contributors
The Science and Ethics Committee
Our scientific publications
Our commitments
Certifications and awards
Carenity in the news
Editorial policy
Code of conduct and privacy policy
Legal notice
Terms of use
Cookies management
Contact
Carenity for professionals

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Home
  • Forums
  • General forums
  • Living with cancer
  • What is your cancer diagnosis?
 Back
Living with cancer

What is your cancer diagnosis?

  •  1,073 views
  •  51 times supported
  •  44 comments
avatar exit

Unregistered member

Edited on 10/10/2015 at 15:59

Hello everyone,

This group contains many different types of cancer. I hope we will experience some sharing across cancer types here in this forum.

I am interested in hearing about your personal story. What kind of cancer do/ did you have and how were you diagnosed?

All the best,

Marina

Follow

Other groups...

All things Christmas
Carenity News
Feedback for Carenity
Fun and games
Good to know
How to use Carenity
Let's talk about COVID-19
Life beyond illness
News from the media
Procedures and Paperwork
Youth patients with chronic conditions

Give your opinion

Survey

Living with obesity: Do you feel supported in your care and treatment?

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

All comments

Go to the last comment

avatar Osidge

Osidge

05/01/2024 at 13:50

Good advisor

avatar Osidge

Osidge

Last activity on 12/05/2026 at 21:16

Joined in 2015


20 comments posted | 1 in the Living with cancer group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Committed

  • Explorer

  • Evaluator


 View profileView  Add a friendAdd  Write

I have an extremely rare condition - T cell Large Granular Lymphocytic Leukaemia.

I had lymphocytosis for a number of years in full blood counts. I eventually asked my GP to look at it. Following a blood screen and a more advanced study, I was diagnosed in 2021. I am not on treatment as my condition is not bad enough but have 6 monthly reviews with my haematological oncologist.

See the signature

Douglas Lewins FRSA


What is your cancer diagnosis? https://www.carenity.co.uk/forum/other-discussions/living-with-cancer/cancer-diagnosis-67 2024-01-05 13:50:52

avatar Snow1

Snow1

24/07/2024 at 20:05

avatar Snow1

Snow1

Last activity on 24/06/2025 at 18:31

Joined in 2020


1 comment posted | 1 in the Living with cancer group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

Lung cancer


What is your cancer diagnosis? https://www.carenity.co.uk/forum/other-discussions/living-with-cancer/cancer-diagnosis-67 2024-07-24 20:05:54

avatar YorkshireJayne

YorkshireJayne

04/07/2025 at 06:30

Good advisor

avatar YorkshireJayne

YorkshireJayne

Last activity on 13/05/2026 at 06:52

Joined in 2021


176 comments posted | 15 in the Living with cancer group

62 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Committed

  • Explorer

  • Evaluator


 View profileView  Add a friendAdd  Write

I was diagnosed in March 2020 with Non-Hodgkin's Follicular Lymphoma, after going to my GP with constant heartburn, feeling full when I ate and I was constipated. What followed over the next 6 weeks was scans, blood tests (they showed raised red platelets), a biopsy and finally a diagnosis.

No treatment as yet, but it's a cancer which won't ever go away fully and I will need more than one lot of treatment when that finally happens. It's treated as an autoimmune disease rather than a blood cancer.

See the signature

Life is for living, do it, no matter what!


What is your cancer diagnosis? https://www.carenity.co.uk/forum/other-discussions/living-with-cancer/cancer-diagnosis-67 2025-07-04 06:30:41

avatar Somya.P

Somya.P

Community manager
12/05/2026 at 17:06

Good advisor

avatar Somya.P

Somya.P

Community manager

Last activity on 28/05/2026 at 03:18

Joined in 2023


1,095 comments posted | 24 in the Living with cancer group

106 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Hello everyone,

each cancer diagnosis is different, and sharing your story can help others feel less alone and more understood.

What type of cancer were you diagnosed with?
When were you diagnosed?
And how has your journey been since then?

Please feel free to share your experience with the other members. 💛

Take care,

Somya from the Carenity team 🌼

@CGRIZZ @Shazzamarazza @davinia79 @jim123 @mrchipps @jonny27 @ChristineStewart15 @jellies @DannuD @greatdanes @Tanplum @AnnieLouise @Benny3840 @whitty @Maurunda @lindalove @LizzyB @YvonneLaz @golfer1 @AJWilson @stringer2948 @MrsSelby @Kazash58 @Summernights @anthony51 @Breastcancer @Sandydon @Floarea @WitchDebs @Bentleysmum @Foxylady. @Kerryb @Mandark @Tigga07 @Moiraanne @TrudyE @ChantelleSherwood @ValRussell @Nichola45 @GrahamMaxwell @Jennifer11 @Debbie73 @Tonimom @Csthy1967 @Amanda4 @BamBam @DaveParkinson @Timbertop @trixey @Rizzo1967 @Lozley1 @BM1384 @Blobby @Mattrawson @Karlsen @Troyhayter @Azaiah @Awaisy17 @LauraRichards @begs123 @wilhelmina @Southaf @dannypos @Billya @Paul67 @GoldieM @Olliet @Nicolinapellicci @Melissa123 @Kevallen @terenceterry @Mandymoo5467 @fefe333 @Tracy10 @Ccorless @Pcaroline @Katieonetit @kathryn.bermingham @Pat22B @Gillyt @PaulineMe @Flinty @Thorzeks @matthew553022 @Paul5000 @JanBotha @PaulJackson @MauriceMcD @Snooze @Sandrag

See the signature

Somya from the Carenity team 🌼


What is your cancer diagnosis? https://www.carenity.co.uk/forum/other-discussions/living-with-cancer/cancer-diagnosis-67 2026-05-12 17:06:34
  • 3
  • 4
  • 5

Give your opinion

Survey

Living with obesity: Do you feel supported in your care and treatment?

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

Articles to discover...

Between promise and reality: can omega-7 improve metabolic health?

18/04/2026 | Nutrition

Between promise and reality: can omega-7 improve metabolic health?

Living a healthy life with a chronic illness: is that really possible?

07/04/2026 | News

Living a healthy life with a chronic illness: is that really possible?

Is too much animal protein bad for you?

04/04/2026 | Nutrition

Is too much animal protein bad for you?

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

25/03/2026 | Testimonial

@lesmal, Carenity Ambassador: Living with epilepsy, leading with empathy

NHS - Get help with prescription costs

12/11/2019 | Procedures & paperwork

NHS - Get help with prescription costs

Diclofenac to become a prescription drug

21/01/2015 | News

Diclofenac to become a prescription drug

Opioids Causing Concerns, Problems for Chronic Pain Patients

14/10/2016 | News

Opioids Causing Concerns, Problems for Chronic Pain Patients

Do you have the winter blues?

21/10/2014 | News

Do you have the winter blues?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

Your subscription has been taken into account

Join now! Log in

About

  • Who are we?
  • Why share your data?
  • The Carenity team
  • The ambassadors
  • Partner associations
  • Contributors
  • The Science and Ethics Committee
  • Our scientific publications
  • Our commitments
  • Certifications and awards
  • Carenity in the news
  • Editorial policy
  • Code of conduct
  • Legal notice
  • Terms of use
  • Cookies management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag de flag es flag it flag us

The www.carenity.co.uk website does not constitute or replace professional medical advice.